1. The impact of public involvement Sarah Buckland Director INVOLVE sbuckland@invo.org.uk www.invo.org.uk

2. National advisory group. Funded by the Department of Health, since 1996 INVOLVE is an National Institute for Health Research Programme Promotes active involvement of the public in NHS, public health and social care research INVOLVE

3. Influencing policy and practice Increasing awareness and sharing experiences of others - website - newsletters - databases Giving advice and guidance - publications - enquiries Role of INVOLVE

4. Research commissioners and policy makers Researchers Public e.g. service users and carers Who needs evidence / knowledge and why ?

5. examples narratives reflective accounts evaluations qualitative studies quantitative studies What evidence / knowledge do we need?

6. Examples of user controlled research Examples of involvement in social care research INVOLVE Database of projects

7. Nature and extent of involvement in health and social care research Reflections on involvement Impact of involvement INVOLVE (2007) invoNET Bibliography Volume One InvoNET library (www.invo.org.uk/invoNET.asp)

8. To identify the benefits and value of public involvement in research To understand the best approaches to public involvement To reflect and learn from the evidence / knowledge INVOLVE Impact Study: Aims

9. Bibliography of resources Review of the literature Reflective analysis INVOLVE Impact Study: Methods

10. research research ethics service users and carers involved researchers implementation and change Impact of involvement on:

11. Sarah Buckland Director INVOLVE sbuckland@invo.org.uk www.invo.org.uk 02380 651088