1. READY OR NOT… HEALTHCARE TRANSITION

2. Joan Badger F2F Healthcare Information Coordinator Parent Josie Badger Pennsylvania Youth Leadership Network, Governing Board National Youth Leadership Network, Vice President Graduate Student at University of Pittsburgh

3. Parent Education and Advocacy Leadership Education Center Family to Family Healthcare Information Center The four main goals for the project coincide with MCHB Goals for CSHCN: 1. Families participate as full partners in decision making at all levels. 2.Services for CSHCN and families will be organized in ways that families can use them easily. 3. Families will have adequate private or public healthcare insurance. 4.Youth transition to adult health care, work and independence.

4. Changing Roles for Families My child/youth can do this I want my child/youth to do this I need to learn how to teach my child/youth to do this Someone else will have to do this for my child/youth Who?

5. Youth: Self Knowledge Brief health history Diagnosis Allergies Basic knowledge of diagnosis Physician Medications and dosage Insurance information

6. Changing Role for Youth Yes, I do this I want to do this I need to learn how to do this Someone else will have to do this Who?

7. Youth: Self Advocacy Start early Gradual assumption of responsibility Correct information about health Physician, parents and healthcare staff must all support the self advocacy

8. Healthcare Notebook Sources: –PA Transition Healthcare Notebook –Medical Home Healthcare Notebook

9. Healthy and Ready to Work Tipsheets Transition Top 10 List ICE Portable Healthcare Summary Getting What You Need at Your Doctor Visit

10. Finding Doctors Referrals First Meeting –Accessible office –Knowledgeable about your condition –Communication –Willing to take extra time –Respects your expertise –Is respected by other doctors

11. Finding Doctors, contiuned Is your partner in treatment plans Is not too quick to change treatment plans that have been working Talks to your youth, rather than you

12. Transition and Insurance Commercial Insurance –Student status Only while enrolled in post high school education full time –Disabled Adult Dependent status Adult, childless continued on family plan to age 30 Medical Assistance –Social Security must be approved as an adult with disabilities

13. Pennsylvania Waivers Consolidated Wavier for Individuals with Mental Retardation Person/Family Directed Support Waiver Attendant Care Waiver Independence Waiver OBRA Waiver Michael Dallas Waiver Elwyn Waiver Aids Waiver Autism Waiver

14. Healthcare Notebook Tools Transition Health Care Checklist American Academy of Pediatrics, AAP.ORGHome –Care Notebooks Google >more>even more>Google health Hard copy CD Flashdrive