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Tennessee is Key to ENDING Childhood Cancer Childhood Action Team TN Cancer Coalition: www.tncancercoalition.orgwww.tncancercoalition.org State Cancer.

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Presentation on theme: "Tennessee is Key to ENDING Childhood Cancer Childhood Action Team TN Cancer Coalition: www.tncancercoalition.orgwww.tncancercoalition.org State Cancer."— Presentation transcript:

1 Tennessee is Key to ENDING Childhood Cancer Childhood Action Team TN Cancer Coalition: www.tncancercoalition.orgwww.tncancercoalition.org State Cancer Plan: http://health.state.tn.us/CCCP/TCCC_Plan.pdfhttp://health.state.tn.us/CCCP/TCCC_Plan.pdf 1

2 Key to the Cure: Tennessee Hospitals Annual Hem/Onc Pediatric VisitsReach * St. Jude Research Hospital for Children76,135Global *Vanderbilt-Ingram Cancer Center/ Monroe Carell Jr. Children’s Hospital 23,308TN, KY, AL, IN East Tennessee Children’s Hospital6,696TN, NC, GA, KY, VA TC Thompson Children’s Hospital4,660 TN, GA, AL, NC Niswonger Children’s Hospital/ St. Jude Affiliate 3,590TN, VA, KY, NC TOTAL114,389 * National Cancer Institute (NCI) designated Comprehensive Cancer Center – recognized for excellence in research, treatment, education and outreach. Throughout 14 southern states, there are only 8 Comprehensive Cancer Centers, of which 2 are in TN. 2

3 Tennessee Organizations: Butterfly Fund:www.butterflyfund.orgwww.butterflyfund.org CanConnect/Playing By Air: www.canconnect.orgwww.canconnect.org Cure4Kids: www.cure4kids.orgwww.cure4kids.org Emily’s Power for a Cure: www.emilyspowerforacure.sitesvp.comwww.emilyspowerforacure.sitesvp.com Franklin 4 The Cure: www.franklinforthecure.orgwww.franklinforthecure.org Gabe’s My Heart: www.gabesmyheart.comwww.gabesmyheart.com Hatcher Foundation: www.hatcherfoundation.orgwww.hatcherfoundation.org Hoover Hope Foundation: www.hooverhope.orgwww.hooverhope.org Jade’s Fund: www.childrenshospital.vanderbilt.org/helpingpatientswww.childrenshospital.vanderbilt.org/helpingpatients Katie’s Helping Hand: www.katieshelpinghand.comwww.katieshelpinghand.com Kidz Team: www.kidzteam.orgwww.kidzteam.org Lana’s Love: www.lanaslove.comwww.lanaslove.com Lily’s Garden: www.lilysgarden.orgwww.lilysgarden.org Live Lovely: www.livelovely.orgwww.livelovely.org TN Cancer Coalition Childhood Action Team: www.tncancercoalition.orgwww.tncancercoalition.org Key to Community Action in the Volunteer State 3

4 More Keys to Community Action National Organizations with Tennessee Affiliations: Alex’s Lemonade Stand Foundation: www.alexslemonade.orgwww.alexslemonade.org Candlelighters/American Childhood Cancer Organization: www.acco.orgwww.acco.org Children’s Cause For Cancer Advocacy: www.childrenscause.orgwww.childrenscause.org CureSearch/Children’s Oncology Group: www.curesearch.orgwww.curesearch.org 46 Momma’s Shave for the Brave (St. Baldricks): www.46mommas.comwww.46mommas.com Gilda’s Club: www.gildasclub.orgwww.gildasclub.org Lighthouse Family Retreat: www.lighthousefamilyretreat.orgwww.lighthousefamilyretreat.org LiveStrong Foundation: www.livestrong.orgwww.livestrong.org Leukemia & Lymphoma Society: www.lls.orgwww.lls.org National Children’s Cancer Society: www.nationalchildrenscancersociety.comwww.nationalchildrenscancersociety.com *People Against Childhood Cancer: www.curechildhoodcancer.ning.comwww.curechildhoodcancer.ning.com Rally Foundation: www.rallyfoundation.orgwww.rallyfoundation.org St. Baldrick’s Foundation: www.stbaldricks.orgwww.stbaldricks.org The Wellness/Cancer Support Community: www.cancersupportcommunity.orgwww.cancersupportcommunity.org *Childhood Cancer Awareness Petition currently signed by 905 Tennesseans. 4

5 Locked out of Normal Family Life 5 Pain/Fear/Guilt: “Will I ever be a normal kid again? My family is turned upside down because of me.” Finances: “Without my job, we had to take a second mortgage and we still can’t pay the bills.” Separation: “I’m scared to wait for the bus alone and I’ve been sleeping at Grandma’s house for months.” Family Stress: “I was told that when a child is diagnosed with cancer, the divorce rate is 75%.” Shock: “Our entire life changed in a day and we had to make tough decisions that would last forever."

6 46 children (2 classrooms) are diagnosed with cancer each day. 9 will not survive. Survivors require lifelong care. 6 Julius - Nashville Andy - McMinnville Caroline - Franklin Gigi - Franklin Sarah - Maryville Logan - Robards Devin - Nashville Colin - Chattanooga Children hold the Keys to our Hearts

7 Children hold the Keys to our Hearts 7 In the U.S., more children die of cancer than any other disease… more than asthma, diabetes, cystic fibrosis, congenital abnormalities, and AIDS combined. Nate - Paducah Lana Beth - Chattanooga Anthony - Murfreesboro Maddie - Lenoir Emily - Knoxville Walker - Knoxville Jade - Franklin In Loving Memory

8 You hold the Key to our Children’s Future 8 1.Join the U.S. House Pediatric Cancer Caucus Contact: Laura Bunten Congressman Michael McCaul’s office laura.bunten@mail.house.govlaura.bunten@mail.house.gov or 202-225-2401 2.Maintain levels of funding in Pediatric Research 3.Establish an NCI Study Section on Pediatric Cancer 4.Support legislation pending:  S 3697 Creating Hope Act  HR 2109 Childhood Cancer Survivorship Act


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