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PATIENT AND CITIZEN RIGHTS:A STATEMENT OF VALUES E.U. OPEN FORUM S.KYRIAKIDES President EUROPA DONNA.

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Presentation on theme: "PATIENT AND CITIZEN RIGHTS:A STATEMENT OF VALUES E.U. OPEN FORUM S.KYRIAKIDES President EUROPA DONNA."— Presentation transcript:

1 PATIENT AND CITIZEN RIGHTS:A STATEMENT OF VALUES E.U. OPEN FORUM S.KYRIAKIDES President EUROPA DONNA

2 THE REALITY FOR ELENI

3 PROMOTION OF BETTER QUALITY OF LIFE CHARTER OF FUNDAMENTAL RIGHTS

4 INTEGRATION SUSTAINABILITY CONCENTRATION ON KEY ASPECTS

5 EUROPA DONNA – The European Breast Cancer Coalition

6 EUROPA DONNA Ten Goals To promote the dissemination and exchange of factual, up-to-date information on breast cancer throughout Europe To promote breast awareness To emphasise the need for appropriate screening and early detection To campaign for the provision of optimum treatment To ensure provision of quality supportive care throughout and after treatment To advocate appropriate training for health professionals To acknowledge good practice and promote its development To demand regular quality assessment of medical equipment To ensure that all women understand fully any proposed treatment options, including entry into clinical trials and their right to a second opinion To promote the advancement of breast cancer research

7 THE RIGHT TO TO SAFETY COMPLAIN COMPENSATION INNOVATION AVOID UNECESSARY SUFFERING AND PAIN

8 THE RIGHT TO PREVENTIVE MEASURES TO ACCESS TO CONSENT TO FREE CHOICE TO PRIVACY/CONFIDENTIALITY TO OBSERVANCE OF QUALITY STANDARDS INFORMATION

9 PATIENT ADVOCACY THE PERSONAL IS POLITICAL

10  Lobbying Activities  Information  Education

11 CITIZENS AND PATIENTS DUTIES AND RESPONSIBILITIES

12 PARTNERS WE ARE ALL

13 Advocacy Training

14 Lobbying Activities National : All Party Parliamentary Groups Individual Country Initiatives

15 Lobbying Activities European : European Health Forum European Patients Forum European Parliamentary Group on Breast Cancer (EPGBC) Public Hearing on Breast Cancer

16

17 WE NEED TO ENSURE TIMELY AND APPROPRIATE HEALTH CARE CONFIDENTIALITY OF DATA RESPECT OF HUMAN DIGNITY IN HEALTH RESERCH SUFFICIENT INFORMATION TO ALLOW INFORMED CHOICE

18 AS ADVOCATES WE NEED TO RAISE AWARENESS OF ALL EUROPEAN INITIATIVES EMPOWER INDIVIDUALS TO TAKE CONTROL OF THEIR FUTURE

19 BUILD A EUROPE WHERE QUALITY OF LIFE IS THE PRIORITY

20 Thank you


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