1. OPTN Patient Affairs Committee Regional Presentation Spring 2011 Laura Ellsworth - Chair Kristie Lemmon – Vice Chair

2. OPTN Educational Iniatives  The Committee completed the rewrite of What Every Patient Needs to Know – Proudly written ‘for patients, by patients”  Available at http://store.unos.org/ http://store.unos.org/

3. OPTN Access to Educational Resources  The Committee expressed concern regarding the limited availability of OPTN/UNOS patient education resources  The Committee has worked with UNOS Communications to pilot a process called Print-on-Demand

4. OPTN Print-on-Demand Features  Centers can customize/localize materials with their logo and contact information  Large-quantity ordering available with volume pricing  Smaller-quantity orders continue to be available during the pilot

5. OPTN Print-on-Demand Resources  Pilot tentatively set to begin in April  What Every Patient Needs to Know booklet (English),  Living Donation brochures (English and Spanish)  If pilot is successful, additional materials and options will be added

6. OPTN Collaboration  Current Minority Affairs Committee (MAC) Kidney Referral Guidance Workgroup  Completed: Membership and Professional Standards Committee (MPSC) on Waitlist Inactivity Focus Group Donor Family Communication Workgroup