1. SUPPORTING A HEALTHY COMMUNITY Lydia N. Collins, NN/LM MAR Consumer Health Coordinator Kathy A. Silks, PA Forward, Project Manager

2. Agenda NN/LM MAR and NLM Health Literacy Information Needs of Consumers Health Information Resources MedlinePlus Drug Resources Resources for Youth Libraries and Health Literacy Affordable Care Act Programming Questions

3. NN/LM MAR AND NLM

4. 8 Regional Offices Support Network members to achieve NN/LM mission 5-year contracts Mission Provide health professionals, K-12 educators and the general public with equal access to and training on health and science resources http://nnlm.gov/mar NN/LM MAR: Your Regional Medical Library NN/LM MAR Staff

5. NN/LM MAR

6. HEALTH LITERACY

7. Consumer Health – Then and Now… 1972 Patient Bill of Rights (American Hospital Association) Realities of Health Care today: Patients are now asked to make decisions about their own disease process. Most patients do not have the tools to make these kinds of decisions Libraries can help!

8. Evolution of E-Patients I n 2000, 52 million Americans searched the internet for health In 2002, 73 million… In 2006, “Googling for a diagnosis” [BMJ] In 2006, only one quarter of online health seekers said they always or usually check the source and date of health information online! In 2009 over 60% of Americans reported searching for health information online and over 60% of these people reported that their online searches impacted their health decisions.

9. Pew Internet Health Online Study 2013 http://www.pewinternet.org/Reports/2013/Health-online.aspx

10. What is the strongest predictor of an individual’s health status? Age Income Employment status Educations Literacy skills Racial/ethnic group

11. Health Literacy… The ability to read, understand and act on health information [Pfizer 2002] The degree to which individuals have the capacity to obtain, process and understand basic health information and services needed to make appropriate health decisions [Healthy People 2020] The degree to which an individual has the capacity to obtain, communicate, process, and understand basic health information and services to make appropriate health decisions [Patient Protection and Affordable Care Act of 2010, Title V]

12. PA Forward 5 Literacies http://www.paforward.org/ Health Literacy “We ENVISION a Pennsylvania with active citizens able to manage their own and their family’s WELL-BEING, empowered to be EFFECTIVE PARTNERS with their healthcare providers, and living LONGER, MORE PRODUCTIVE lives”

13. Fill in the blanks One out of ? American adults reads at the 5th grade level or below. one out of 5 Most Americans read at the 8th to 9th grade level, yet most health care materials are written above the ? grade level. 10 th grade

14. Health Literacy Skills are Critical!! Essential life skill Public health imperative Essential part of social capital Critical economic issue Sources: “Navigating Health: The Role of Health Literacy”, Kickbusch The health literacy of America's adults: Results from the 2003 National Assessment of Adult Literacy, Kutner et al Health literacy: An update of public health and medical literature., rudd et al.

15. PA Forward Health Literacy Rationale “Libraries can play an important role in helping citizens manage their own and their family’s well-being, and empower them to be effective partners with their healthcare providers so they can live longer, more productive lives”. http://pala.affiniscape.com/associations/9291/files/LITERACYhealth.pdf

16. PA Forward Rationale continued

17. NATIONAL LIBRARY OF MEDICINE RESOURCES

18. Suitable for ALL ages Available in English and Spanish MedlinePlus.gov includes information on: Diseases and Conditions Wellness Issues Drugs & Supplements Interactive Tutorials Anatomy & Surgery Videos Calculators & Quizzes Games and much more… MedlinePlus.gov

19. 924 English 911 Spanish 924 English 911 Spanish ~1,000 drugs 100 supplements ~1,000 drugs 100 supplements 164 tutorials 78 anatomy videos 138 surgery videos 164 tutorials 78 anatomy videos 138 surgery videos 22 English issues 3 bilingual issues 22 English issues 3 bilingual issues >40 languages >250 topics >3,300 links >40 languages >250 topics >3,300 links Over 100 directories of doctors, hospitals, clinics & libraries ~ 3,500 articles > 2,000 images ~ 3,500 articles > 2,000 images 15-20 stories added daily 1,200 links to ClinicalTrials.gov MedlinePlus

20. MedlinePlus Health Literacy http://www.nlm.nih.gov/medlineplus/healthliteracy.html

21. MedlinePlus Health Literacy cont…

22. MedlinePlus: Topics of Interest Health Insurance Bullying Child Safety Asthma Obesity Drugs and Young People Attention Deficit Hyperactivity Disorder Autism Disaster Preparation and Recovery Winter Weather Emergencies Mental Health Stress Teen Violence Social/Family Issues Environmental Health Caregivers Parenting Homeless Health Concerns Domestic Violence Lice Flu Conjunctivitis Learning Disabilities Teen Development Veterans Health Pet Health

23. MedlinePlus – additional resources

24. Multiple Languages on Health Topic Pages

25. Multilingual Materials

26. NIHSeniorHealth http://nihseniorhealth.gov/ NIH Senior Health provides health and wellness information for older adults from the National Institutes of Health. This online resource includes: Health Topics Exercise Stories Health Videos Trainer’s Toolkit

27. Pillbox BETA Pillbox enables rapid identification of unknown solid- dosage medications (tablets/capsules) based on physical characteristics and high-resolution images. Once a medication is identified, Pillbox provides links to drug information and drug labels. http://pillbox.nlm.nih.gov/

28. Drug Information Portal The NLM Drug Information Portal gives users a gateway to selected drug information from the U.S. National Library of Medicine and other key U.S. Government agencies. http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp

29. PubMed Health specializes in reviews of clinical effectiveness research, with easy-to-read summaries for consumers as well as full technical reports. Clinical effectiveness research finds answers to the question “What works?” in medical and health care. Includes Behind the Headlines section (from England's National Health Service). http://www.ncbi.nlm.nih.gov/pubmedhealth/ PubMed Health

30. Biology Environmental Health/Chemistry Forensics and Medical Technology General Health Genetics HIV/AIDS Careers Health Information Tutorials Lesson Plans Projects Spanish-Language Resources http://sis.nlm.nih.gov/outreach/k12.html NLM K-12 Science and Health Education Resources

31. Suitable for ages 7-11 http://toxmystery.nlm.nih.gov/ Toxie the Cat helps children find the hazards hidden in each room and offers hints when needed. Available in English and Spanish “For Teachers” section includes 3 lesson plans with student worksheets/activities” Parent Resources ToxMystery

32. ToxMystery: Garage Scene

33. Suitable for grades 6-12+ http://toxtown.nlm.nih.gov/ http://www.toxtown.nlm.nih.gov/text_version/teachers6.php Provides information on: Everyday locations where you might find toxic chemicals Non-technical descriptions of chemicals How the environment can impact human health Available in English and Spanish Includes an afterschool Science Club Curriculum Tox Town

34. Tox Town: City Scene

35. Suitable for grades 6-12+ http://householdproducts.nlm.nih.gov/ HPD was designed to answer questions such as: What’s under your kitchen sink, in your garage, in your bathroom, and on the shelves in your laundry room? Do these household products pose a potential health risk to you and your family? What are the chemical ingredients and their percentages in specific brands? Which products contain specific chemical ingredients? Household Products Database (HPD)

36. HPD: Product Categories

37. http://geneed.nlm.nih.gov/ GeneEd Topics

38. GeneEd: Biostatistics

39. LIBRARIES AND HEALTH LITERACY

40. Encouraging Partnerships

41. PA Forward: Partner Organizations http://www.paforward.org/home/partnerssupporters/partnerorganizations.aspx

42. PA Forward: Partner Organizations cont…

43. “The Exhibition Program creates lively and informative exhibitions and educational resources that enhance awareness of and appreciation for the collections of the National Library of Medicine. Explore. Discover. Enjoy”. Topics include: Medicine & the Arts Science & Society Patients & Practitioners The Technology of Medicine Suitable for grades K-12+ http://www.nlm.nih.gov/hmd/about/exhibition/exhibitions.html NLM Exhibition Program

44. http://www.nlm.nih.gov/hmd/about/exhibition/exhibitions.html NLM Exhibition Topics

45. Explore the experiences of veterans of the American Civil War with the online exhibit https://www.nlm.nih.gov/exhibition/lifeandlimb/index.html Students can learn about: Wounds of War Deadly Diseases Civil War Surgery Artificial Limbs and more Suitable for grades K-12+ Life and Limb: The Toll of the American Civil War

46. Harry Potter’s World: Renaissance Science, Magic, and Medicine Harry Potter’s World presents the following instructional resources for the educators in middle-and high-schools, and in higher education institutions. Explore genetics through the characters and creatures featured in Harry Potter! Includes instructional guides and materials Suitable for grades 6-12 http://www.nlm.nih.gov/exhibition/harrypottersworld/educationResources.html

47. Frankenstein: Penetrating the Secrets of Nature includes lesson plans for educators in middle-and high-schools. Each lesson plan provides suggested instructional guides and materials that an educator may adapt in whole or in parts as he or she deems most appropriate for the students’ interest, level, and academic goals. Lesson plans contain background information, relevant academic topics, national standards, learning outcomes, step- by-step procedures, and all instructional materials that include several historical primary sources. Frankenstein Exhibition Suitable for grades 6-12+ http://www.nlm.nih.gov/frankenstein/

48. MedlinePlus Magazine A quarterly publication of the Friends of the National Library of Medicine. Get a free subscription! Libraries can order in bulk Spanish available also http://www.nlm.nih.gov/medlineplus/magazine/index.html http://www.fnlm.org/Program_MLP/MLP_intro.html

49. NLM Educational & Printed Materials http://nnlm.gov/mar/training/materials.html If you are an NN/LM network member in the Middle Atlantic Region (DE, NJ, NY, or PA), you may order brochures online.

50. Information Rx.org http://informationrx.org/

51. Stay Connected: NN/LM MAR

52. Upcoming Webinars from NN/LM MAR Click on Upcoming MAR Classes for registration information: http://nnlm.gov/mar/training/

53. Take-Away Points 1) Help your library users be informed health information searchers 2) Encourage them to ask questions 3) Be an advocate for health 4) Look to NLM for great resources! 5) Contact NN/LM MAR to support your efforts!!

54. Reflection Think of the three most important take home messages from today’s presentation. Think of three people to share this information.

55. Thank You! This project has been funded in whole or in part with Federal funds from the National Library of Medicine, National Institutes of Health, Department of Health and Human Services, under Contract No. HHS-N-276- 2011-00003-C with the University of Pittsburgh, Health Sciences Library System. Lydia Collins, Consumer Health Coordinator National Network of Libraries of Medicine, Middle Atlantic Region http://nnlm.gov/mar/ nnlmmar@pitt.edu