1. ________________________________________________________________________________________ alzheimers.org.uk My name is not dementia

2. Carolyn Poppham Board Member ADI Former Trustee of Alzheimer’s Society ________________________________________________________________________________________ alzheimers.org.uk

3. ________________________________________________________________________________________ alzheimers.org.uk Graham Browne Ambassador Alzheimer’s Society

4. ________________________________________________________________________________________ alzheimers.org.uk Andrew Ketteringham Director, External Affairs Alzheimer’s Society

5. ________________________________________________________________________________________ alzheimers.org.uk

6. ________________________________________________________________________________________ alzheimers.org.uk

7. ________________________________________________________________________________________ alzheimers.org.uk The key quality of life indicators in order of importance 1.relationship or someone to talk to 2.environment 3.physical health 4.sense of humour 5.independence 6.ability to communicate 7.sense of personal identity 8.ability or opportunity to engage in activities 9.ability to practice faith or religion 10.the absence of stigma

8. In short, a list that almost anyone would compile! ________________________________________________________________________________________ alzheimers.org.uk

9. Not diminished by dementia ________________________________________________________________________________________ alzheimers.org.uk

10. Respect, citizenship and inclusion ________________________________________________________________________________________ alzheimers.org.uk

11. Quality of life defined by the person and their circumstances, not their dementia ________________________________________________________________________________________ alzheimers.org.uk

12. Many factors outside a person’s dementia impact quality of life – support services should address these wider issues ________________________________________________________________________________________ alzheimers.org.uk

13. Importance of factors varies a little from different groups (ethnicity and stage of dementia) ________________________________________________________________________________________ alzheimers.org.uk