1. Beating cancer and surviving the cure!
Randy Henniger,
27 year colon cancer survivor
Colostomate & urostomate
Cancer survivor community advocate
Beating cancer and surviving the cure!
Copyright©by R. Henniger 2012

2. Diagnosed with Stage III rectal cancer at age 30
Randy’s story:
Diagnosed with Stage III rectal cancer at age 30
Surgery with permanent colostomy
6 weeks of radiation treatment
ED with penile implant at age 31
Bladder dysfunction at 40
Neuropathy at 50
Urostomy surgery at 58
Active life: Surfing, yoga, biking, hiking, swimming
Great Comebacks Western Region award winner: 2011
Copyright©by R. Henniger 2012

3. You know you’re an ostomate when…
• You have a favorite "Ensure" flavor.
• People ask about your guts, before they ask about your family. • You have more photos of your insides that the outsides.
• You have a spare pair of underwear in your bag/pocket. • You give directions via toilets rather than by restaurants.
More humor at: humor/?reply_sort=asc&page=1#replies /
Copyright©by R. Henniger 2012

4. Image & Relationships I am the same person I was before surgery
“We don’t love you for how you go to the bathroom”
When to share?
First date? No
Before intimacy? Yes
Wraps, straps and sashes can be sexy
Prepare, pick the best time, try a smaller pouch
Emotional recovery assistance as well as physical
Copyright©by R. Henniger 2012

5. Diet & Nutrition Keep a “Food” journal Fewer “feet” is better
Times, amounts, results including meds
Fewer “feet” is better
0: Fish, 2: Chicken/turkey, 4 feet: beef/pork
Half the plate: veggies, ¼ plate protein, ¼ carbs
Fluids, fluids, fluids: 64 oz min.(check w/ doc)
Illies require more hydration
Diarrhea is our enemy, lomotil is our friend
Copyright©by R. Henniger 2012

6. Physical activities Consult a physical therapist
Take care when lifting
Add “padding” when biking
Swimming: use a belt, non-filtered pouch
Protect your stoma: Stealthbelt
Active Ostomates: “NO LIMITS”
30 minutes/day of aerobic exercise
Copyright©by R. Henniger 2012

7. Ostomies Sigmoid colostomy Ileostomy Ascending colostomy
Transcending colostomy
Urostomy
Stoma marking before surgery? Yes!
Beltline: No!
Protruding: Yes! More for illies
Copyright©by R. Henniger 2012

8. Ostomy products
One Piece Drainable piece: closed, cut to fit Irrigation Kit*
Two Piece Mouldable Convex Stoma Cap Closed End Urostomy
Drainable Wafer Wafer Pouch one piece
*Only colostomates with healthy colons are candidates to irrigate, check with WOCN
Copyright©by R. Henniger 2012

9. Skin issues 5 day max. wear for ostomy appliance
Check “all around” stoma (mirror)
Gently press skin away from appliance don’t pull
Redness, rash, irritation
Pancake with 3 layers of stoma-powder/skin prep
More than 3 days, see your WOCN
24 hour skin trial for anything new
No creams, oils or soap residue
Copyright©by R. Henniger 2012

10. Tips & tricks Illies Pouch liners (colomagik)
Stool solidifier (SmellEze)
Horizontal pouch position for sleeping
Pouch liners (colomagik)
Pouch deodorants (mouthwash)
Skin Prep: Torbot Skin prep wipes
Ostomy and hernia support belts:Nu Hope
Emergency kits: car, office, gym, 2nd home
Copyright©by R. Henniger 2012

11. New Ostomate Support Needs
Diagnosis
Emotional
Education
Decision
Treatment
Physical
Nutrition
Stay the course
Post-op
Ostomy care
New me
Good survivor
Copyright©by R. Henniger 2012

12. Diagnosis Make a Decision Gathering Resources Preparing Emotionally
Ostomy as an Option
Gathering Resources
Ostomy Buddies and Online Community
Preparing Emotionally
Ostomates are people too!
Copyright©by R. Henniger 2012

13. Surgery & Recovery Pre-Op Physical Recovery: Physical Therapy, diet
Wound, Ostomy & Continence
Nurse (WOCN) consult for stoma marking/location
Physical Recovery: Physical Therapy, diet
Emotional Recovery: Mental Health Prof.
Get the Right Products and Support
WOCN Participation
Manufacturers support programs available
Support sites include CCA’s CRC connections, www. ostomy.org
Copyright©by R. Henniger 2012

14. Post-Op Acceptance A Good Survivor Paying it Forward
The new you, “No Limits!”
A Good Survivor
Bitter to Better!, Victim to Victor!
Paying it Forward
Helping others helps us
Regular follow ups with WOCN
UOAA support group meetings: Calendar
View UOAA Support Group Meetings_Western Region calendar
Copyright©by R. Henniger 2012

15. Active Ostomates
Copyright©by R. Henniger 2012

16. Pay it Forward Saturday, March 2, 2013 in Land Park: Sac
800 participants, $40,000 raised for FREE screening
Copyright©by R. Henniger 2012

17. Resources Facebook page: ActiveOstomates UOAA, www.ostomy.org
UOAA,
Convatec CIC:
OstomyWorld
Copyright©by R. Henniger 2012

18. Contact Info
Copyright©by R. Henniger 2012