1. POTENTIAL OF CANCER REGISTRATION DATA FOR RESEARCH/AUDIT Thursday 3 September 2009

2. Time is of the Essence

3. Ireland 2008 – Size of Datasets Cancer Registries 29,000 Cancer Cases 11,000 Cancer Deaths 94,000 Living with Cancer (1994-2004) excluding Non-Melanoma Skin Cancer 450,000 Cases to date

4.  Patient – Demographic Details/Comorbidity  Disease  Services Used, eg diagnostics  Screening histories  Geography of Disease  Treatment  Survival  Quality of Life Range of Data Items

5. Expect the Unexpected The Patient - Communication Referral to dieticians, especially GUT cancers Note that discussion with patient Information re diagnosis/prognosis in GP letter Speed GP communication with MDT management systems Psycho-social referrals

6. PSA Tests on Population Level* Barrett’s Oesophagus* Colorectal Polyp Register Service Pathways* *All Ireland Unique Datasets Risk Assessment

7. NCI Cancer Prevention Fellowships NCI Cancer Prevention Summer School Barrett’s Consortium International Assn Research Cancer European Network Cancer Registries International Linkages www.qub.ac.uk/NICR

8.  Biobanks  Census – N.I. Longitudinal Study  GP Research Database  Cancer Waits/MDTS  N I TELLUS Study Potential For Linkage Other Datasets

9. Tellus Study (Arsenic Levels)

10. Changing Cancer Services - New Clinical Data Sources

11. CaPPs: Patient Pathway View

13. CaPPS MDM Screen: Staging Work Up

14. CaPPS: Treatment screen

15. CaPPS: Clinical Nurse Specialist/AHP

16. CaPPS: Follow up screen

17. Surveillance of Early Disease Modelling Future Trends Economics of Cancer Patient Experience Service Quality Improved Services for Patients Research Areas

18. N. Ireland Cancer Mulhouse Building Grosvenor Road Belfast BT12 6BJ Tel 028 9063 2573 Fax 028 9024 8017 Email nicr@qub.ac.uk Web www.qub.ac.uk/nicrnicr@qub.ac.ukwww.qub.ac.uk/nicr National Cancer Registry Ireland Building 6800 Cork Airport Business Park Kinsale Road Cork Ireland Tel 00 3532 1431 8014 Fax 00 3532 1431 8016 Email info@ncri.ie Web www.ncri.ie info@ncri.iewww.ncri.ie

19. CaPPS: Monitoring Cancer Targets