1. Falkland Surgery Data Sharing 16 th July 2013

4. What are we discussing today Not specifically about your GP records Not specifically about Online Access Specifically new and evolving systematic sharing of data locally and nationally

5. Terminology Data Protection Act – Protect illegal access or use Caldicott – Aim to ensure sharing follows proscribed guidelines Common Law – Prevents inappropriate sharing

7. Caldicott Principles Justify the purpose(s) Don't use patient identifiable information unless it is absolutely necessary Use the minimum necessary patient-identifiable information Access to patient identifiable information should be on a strict need-to-know basis Everyone with access to patient identifiable information should be aware of their responsibilities

9. Examples of our data sharing ACG – Existing – Local Eclipse – New – Local SCR (Summary Care Record) – New – National care.data – New – National Letters QOF

10. ACG Aggregated Clinical Groups Uploaded data under SC CSU Primary role is to look at who is most likely to need admission and provide “early warning” intervention Running for 2yrs but now patient identifiable data Monthly Meetings

11. Eclipse Principally Diabetes Care Allows alert for drug warnings across all patients Separate secure database in Kent Centralized across the West Berks Area Pts identifiable via “Emis number”

12. Summary Care Record Pre-existing but being rolled out nationally in stages Summary of demographics, drugs and allergies (currently) Intended for sharing with 2y care, A&E etc Latest news – End of Life Care, Major life events…

13. SCR The current position as at 26/03/2013 is: SCRs created 25,512,399 Patients contacted 41,560,182 Opt out 1.35% GP practices live 3,546

15. care.data New National project Compulsory for GPs (but patients can opt-out) Fairly extensive extraction of coded data Extension of Secondary care data already there Looking at activity, prevalence, trends etc Anonymous sharing outside NHSIC/HSCIC

16. Hospital Communication All referrals contain certain data Predominantly Drugs Allergies Significant problems Demographics Referral details (the letter)

17. Financial data We share data for QOF (anonymous) LES/DES/NES (anonymous) Prescribing (anonymous, centrally aggregated data for collected scripts) Current tools, QOF/QMAS, Chart/MiQuest Upcoming tools, GPES

18. Permissions care.data – GP legally obliged, Pts - two levels SCR Eclipse ACG QOF and LES - totally anonymous

20. Any Questions care.data ACG SCR Eclipse QOF LES/DES/NES Prescribing Secondary Care Individual requests (Insurance/DVLA etc)