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Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and Research HHS, Office of the National Coordinator for Health Information Technology (ONC)
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2February 29, 2008 HHS/ONC - Alliance for Health Reform Benefits of Health Information Technology Enables the transformation to higher quality, more efficient, patient-focused health Enables access and use by care providers, and patients and their designees Anywhere. Anytime.
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3February 29, 2008 HHS/ONC - Alliance for Health Reform Priority for Policy Discussions New issues or opportunities raised by health IT Health IT as an opportunity to reconsider existing policies or
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4February 29, 2008 HHS/ONC - Alliance for Health Reform Landscape – Whats New? Capabilities to link data Capabilities to look up patient information Opportunities for enhanced protections Opportunities for greater consumer involvement Opportunities for increased consumer electronic access to their information
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5February 29, 2008 HHS/ONC - Alliance for Health Reform Landscape - Existing Protections Federal Laws HIPAA Privacy and Security Rules Confidentiality of Alcohol and Drug Abuse Patient Records Rule (42 CFR Part 2) Federal Privacy Act Others, e.g., Federal Trade Commission Act State Laws Much variation Some more protective Some different Contractual Requirements
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6February 29, 2008 HHS/ONC - Alliance for Health Reform Landscape – What are the issues? Tension between access and privacy Misconceptions and Confusion Protections may not reflect new environment
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7February 29, 2008 HHS/ONC - Alliance for Health Reform Policy Levers Accreditation/Certification Bully Pulpit Procurement Incentives/Disincentives Legislation Regulation
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8February 29, 2008 HHS/ONC - Alliance for Health Reform ONC – Coordinating a Nationwide Approach State Coordination –Health Information Security and Privacy Collaboration (HISPC) –State Alliance for e-Health Federal and Related Activities –American Health Information Community (FACA) CPS Workgroup –Consumer Capabilities in NHIN Trial Implementations
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9February 29, 2008 HHS/ONC - Alliance for Health Reform Considerations for Policy Development Recognize the foundation of privacy protections at a state and federal level Prevent unintended consequences: Use policy mechanisms that can adapt with technology changes Consider impact on patient care Build consensus through stakeholder involvement Prioritize
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10February 29, 2008 HHS/ONC - Alliance for Health Reform Formula for Quality Health Care + Consumer Protections/ Access = Trusted Health Information Exchange Quality Health Care Electronic Health Information
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11February 29, 2008 HHS/ONC - Alliance for Health Reform For More Information: www.hhs.gov/healthit
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