1. Communication with Parents and Patients Throughout the Cancer Treatment Process A Comparison of the Online Media of The Dana-Farber Boston Children’s Cancer and Blood Disorder Center, St. Jude’s Children’s Research Hospital, and Tufts Medical Center’s Floating Hospital for Children Sarah Soffer Tufts University School of Medicine-PHPD MPH in Health Communication Candidate

2. Dana Farber Boston Children’s Cancer and Blood Disorders Center Comprehensive Cancer Treatment Physical, Psychosocial, Mental Health In-House Supportive Services and Resources Long-term Follow-Up Care and Support Target Audience: Parents of Prospective Patients, Survivors of Pediatric Cancer

9. SWOT Analysis Strengths Strong Online Presence Recognizable Institutes Large amount of educational material for parents Anecdotal information for parents Multiple formats to media Visually appealing media Weaknesses Health literacy issue in some YouTube videos Lack of kid-friendly educational resources for patients Limited interactive media Difficult to navigate between sites Multiple twitter and facebook accounts Not well targeted

10. SWOT Analysis (cont’d) Opportunities High demand for cancer- related educational materials Parent and patient High/Increasing online presence of pediatric and parent populations Threats Large amount of unreliable information circulating Appeal of instead visiting single-institution cancer care center websites

11. Recommendations for Dana Farber/Boston Children’s Low Resource Creation of Center-specific Twitter and Facebook Accounts Resource Intensive Portion of website with patient-directed explanations of Treatment Services Fleisch-Kincaid Revision of YouTube Informational Videos Interactive Introductions to Facility and Staff Tour

12. St. Jude’s Children’s Research Hospital Comprehensive Treatment of Pediatric Cancer Survivorship Care and Support Radiation Oncology, General Oncology, and Cancer Prevention Research Clinical Trials of Cancer Treatment Need-blind Accommodation Fundraising Target Audience- Parents of Prospective Patients, Survivors of Pediatric Cancer

18. SWOT Analysis Strengths Highly publicized Written resources for former patients and parents Survivorship portion of website Strong YouTube, Facebook, and Twitter presence Easy to Navigate Weaknesses Health Literacy Issue with media for parents Lack of age appropriate educational materials for patients Survivorship materials aimed at adults, not adolescents Lack of visual appeal Lack of anecdotal/video- based education on YouTube

19. SWOT Analysis (cont’d) Opportunities Parents and patients eager to seek and receive information Nationally recognized organization Strong celebrity connections Threats Inaccurate or misleading cancer-related websites Competition from other cancer-related charities Emphasis on fundraising and research

20. Recommendations for St. Jude’s Low Resource Twitter targeting current patients and families Resource Intensive Separate portion of website targeted at current/prospective patients Fleisch-Kincaid revision of illness descriptions Patient-perspective YouTube videos Survivorship portion directed at adolescents/young adults More visual, relevant

21. Floating Hospital for Children at Tufts Medical Center “Promote Health and Prevent Disease” Treat Pediatric Cancer Patients Long Term Survivorship Care Add to Research on More Effective Treatments and Forms of Prevention Target Audience- Parents of Prospective Patients

27. SWOT Analysis Strengths Visually Appealing Website Lots of Information for Parents Health Literacy Considerations Ease of Navigation Many Specific Descriptions of Available Family Services Financial, Educational, Support Weaknesses Lack of Specific YouTube and Twitter Accounts Low Video Quality No Descriptions of Illnesses Limited Interactive Components No Information Aimed at Patient

28. SWOT Analysis (cont’d) Opportunities Parents and Patients Eager to Seek and Receive Information Newly Implemented Reid R. Saco AYA Clinic Recently Received AYA Website Grant Threats More Visible Treatment Centers Great Deal of Incorrect of Misleading Cancer-Related Information

29. Recommendations for the Floating Hospital Low Resource Separate Facebook Account for Cancer Center Create YouTube Account to House Existing Videos Add Explanations of Diseases in Index Resource Intensive Separate Section Speaking Directly to Children Outlining Services, What to Expect Interactive Component Separate Survivorship and Long Term Care Section

30. Comparison of Organizations Dana- Farber/Boston Children’s St. Jude’sFloating Hospital Health LiteracyClear written descriptions of services, but complex video explanations of illnesses Medical jargon used -Circular glossary Description of services and treatment process easy to understand and process Education of Parents Website targeted at parents -Description of illnesses and services Website targeted at parents -Descriptions of illnesses -Emphasis on financial Parts of website targeted at parents -Description of services -Emphasis on financial -YouTube Video

31. Comparison of Organizations (cont’d) Dana- Farber/Boston Children’s St. Jude’sFloating Hospital Social Media (Twitter, Facebook) No distinct account Emphasis on fundraising over education No distinct account Education of Children “Your Child” Explanations Survivorship guide aimed at adults “Your Child” Explanations Interactive Components Social Media and Thriving blog Limited to Social Media Ease of Navigation LowStrong

32. Thank You! Are There Any Questions?