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James Lind Alliance Working Partnership on Urinary Incontinence.

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Presentation on theme: "James Lind Alliance Working Partnership on Urinary Incontinence."— Presentation transcript:

1 James Lind Alliance Working Partnership on Urinary Incontinence

2 Tallon et al 2000 Consulted rheumatologists, physiotherapists, GPs & patients What they most often sought information & evidence on re. treatment of osteoarthritis of the knee Compared with published research evidence Lancet 2000; 355: 2037–40 James Lind Alliance Working Partnership on Urinary Incontinence

3 Rheumatologists: Indications & outcomes re. knee replacement Physiotherapists: Outcomes of replacement & exercise-based Tx GPs: Success rates of surgery; Conservative Tx - exercise & education Patients: Conservative Tx; Self-help, coping strategies, aids James Lind Alliance Working Partnership on Urinary Incontinence

4 RCTs: 83% = drug treatments, 5% surgery All commercially funded research: 89% = drug treatments, 4% = surgery “If this mismatch is not addressed, then evidence-based medicine will not be representative of consumer needs” James Lind Alliance Working Partnership on Urinary Incontinence

5 Lind J. A treatise on the scurvy. In three parts. Containing an inquiry into the nature, causes and cure of that disease. Together with a critical and chronological view of what has been published on the subject. Edinburgh: Printed by Sands, Murray and Cochran for A Kincaid and A Donaldson; 1753.

6 Established by Iain Chalmers Aims to bring together clinician & patient organisations in “Working Partnerships” To identify & prioritise questions of everyday clinical importance not adequately answered by existing research evidence Reporting to MRC and NHS HTA programme James Lind Alliance

7 Initiation Consultation Collation Prioritisation Reporting James Lind Alliance Working Partnership on Urinary Incontinence

8 Initiation Identification of potential partner organisations Exploratory meeting Consultation Collation Prioritisation Reporting James Lind Alliance Working Partnership on Urinary Incontinence

9 Positive responses as at 30/3/07 Alzheimer's Society Association for Continence Advice Association of Chartered Physiotherapist in Women's Health Association for Spina Bifida and Hydrocephalus British Association of Urological Nurses British Association of Urological Surgeons British Geriatrics Society British Society of Urogynaecology Continence Foundation Cystitis & Overactive Bladder Foundation InContact Multiple Sclerosis Trust Pelvic Pain Support Network Disabled Living Foundation Royal College of Nurses Continence Care Forum Royal College of Obstetricians and Gynaecologists Spinal Injuries Association UCAN - Academic Urology Unit Urostomy Association James Lind Alliance Working Partnership on Urinary Incontinence

10 Initiation Identification of potential partner organisations Exploratory meeting Consultation Collation Prioritisation Reporting James Lind Alliance Working Partnership on Urinary Incontinence

11 Initiation Consultation Harvesting questions from members Existing sources: question-answering resources, research recommendations Collation Prioritisation Reporting James Lind Alliance Working Partnership on Urinary Incontinence

12 Initiation Consultation Collation Qs gathered, categorised, combined & refined Existing evidence base checked by C.I.G. Remainder formed into clear research Qs Prioritisation Reporting James Lind Alliance Working Partnership on Urinary Incontinence

13 Initiation Consultation Collation Prioritisation Prioritisation of research Qs thru consensus Methods informed by asthma WP Reporting James Lind Alliance Working Partnership on Urinary Incontinence

14 Initiation Consultation Collation Prioritisation Reporting Schedule of prioritised Qs to MRC & NHS HTA programme and published Resulting funding applications at advantage? James Lind Alliance Working Partnership on Urinary Incontinence

15 Thanks to… Prof Adrian Grant, Sir Iain Chalmers, Dr Alex Greene, Jude Frankau, Lester Firkins, Sally Crowe Medical Research Council, NHS HTA Programme, NHS R&D Programme, Cochrane Collaboration, Association of Medical Research Charities, Royal Society of Medicine, INVOLVE James Lind Alliance Working Partnership on Urinary Incontinence


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