1. Welcome

2. ©2006, Vanderbilt University 2 State / Regional Participation Alabama Arizona Florida Louisiana New York Tennessee Wisconsin Arkansas California Georgia Maryland Oklahoma Texas National Organizations

3. ©2006, Vanderbilt University 3 Participating Organizations AHRQ AAMC The Bogatin Law Firm, PLC Davis Wright Tremaine LLP eHealth Initiative Intel Corporation Iowa Foundation for Medical Care Markle Foundation My Health Choice Regenstrief Institute St. Jude Children Research Hospital AHIMA Avalere Health, LLC CIGNA Government Services DHHS/ONC HCA Internet2 Johnson and Johnson Medical Banking Project National Governors Association Shared Health Vanderbilt University Woolley & Associates

4. ©2006, Vanderbilt University 4

5. 5 The Discussion

6. ©2006, Vanderbilt University 6

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10. 10 What We Learned from Our December Workshop Confidentiality and privacy are critical concerns Differences of opinion are striking There is a need for education across all sectors There is no quick fix to the issues Principles are essential Some practices are widely held, some are controversial Establishing trust is difficult, but achievable Data-sharing agreements are essential for early adoption in at least settings

11. ©2006, Vanderbilt University 11

12. ©2006, Vanderbilt University 12 Create a sense of a “virtual Community” Declare expectations from workshop Identify major issues that must be addressed through the framework Develop a set of principles and a common policy framework as basis for action Explore the issues through case studies and discussion Develop an initial set of responses to issues Discuss as a group Develop an attendee-specific approach for creating appropriate policies and agreements that address these issues and enable data-exchange to take place Approach Day 1 Day 2

13. Ground Rules Tom Lloyd