1. Personal Health Information Management - PHIM

2. A relevant example for information sharing  CaringBridge.org -- http://www.caringbridge.org/ http://www.caringbridge.org/  For example, http://www.caringbridge.org/visit/depasquale http://www.caringbridge.org/visit/depasquale

3. An overall message  Increasing responsibility of the patients to be in charge of their treatments.  Studies show that more engaged and involved patients respond better to treatment  Health care is fragmented and specialists do not communicate with each other, except through the specialist  Health care is part of a larger life picture that involves activities not directly related to the health treatments.

4. Fragmentation  Various doctors  Caregivers  Family  Work  Other interests and activities  How much should each know? Whose responsibility is it that the treatment is right?

5. Personal Health Records  Tools provide record of health history to the patient.  Information generally web based  Access needs to be open to those who need the information to treat the patient, but protected from those who should not see it.  Keep a record of medications, allergic reactions, potential interactions of medications, past conditions, surgery, test results, etc.

6. Data collection  Home health management technologies collect information about conditions  Pacemakers can be read through a phone connection to provide an update on the patient’s condidition from home  Diabetes monitors check blood sugar levels  Some devices monitor for a number of conditions and send an alert if a danger is detected  These are especially valuable for people with chronic conditions who live alone.

7. Study findings demostrate needs:  Information is fragmented  People do not always know what to do with information when the have it  People forget or cannot find information when it is needed  People can become overwhelmed by available information  People’s approach to PIM needs support

8. Further details, from radiology  Radiology & IT presentation by Dr. David Meyer