1. Veterans Health Administration Data Registry Gregg Seppala Data Administrator Veterans Health Administration Gregg.Seppala@med.va.gov Presentation for the ISO/IEC Open Forum on Metadata Registries Santa Fe, NM January 18, 2000

2. ISO Open Forum 01/18/00VHA Metadata Registry2 VHA profile: population 25.6 million veterans Used by more than 40% of service- connected and low income veterans

3. ISO Open Forum 01/18/00VHA Metadata Registry3 VHA profile: resources $18.3 billion budget 215,468 employees

4. ISO Open Forum 01/18/00VHA Metadata Registry4 VHA profile: facilities Health care facilities in 50 states, District of Columbia, and Puerto Rico 172 medical centers 551 ambulatory care & community-based outpatient clinics 131 nursing homes 40 domiciliaries 73 comprehensive home care programs

5. ISO Open Forum 01/18/00VHA Metadata Registry5 VHA profile: services provided VHA provides health care services to 3.6 million individuals in a year 750,000 hospital patients 106,000 nursing home patients 25,000 domiciliary patients 35.8 million outpatient clinic visits

6. ISO Open Forum 01/18/00VHA Metadata Registry6 VHA profile: I.T. environment 142 VISTA implementations 92 national databases 22 Veterans Integrated Service Networks 5 “value added” data provider organizations Data holdings stretch back 20+ years

7. ISO Open Forum 01/18/00VHA Metadata Registry7 VHA CDR – origins December 1997 presentation on Australian Health Information Knowledgebase at a Data Registry Coalition meeting October 1998 Corporate Data Registry included in the VHA Information Technology Architecture March 2000 VHA CDR begins operation

8. ISO Open Forum 01/18/00VHA Metadata Registry8 VHA CDR – goals Reduce amount of unnecessary duplicate data in corporate databases Increase awareness and understanding of inventory of data kept in corporate databases Reduce time to access and identify information about data in corporate databases Provide a central data element resource for software development projects

9. ISO Open Forum 01/18/00VHA Metadata Registry9 VHA CDR – user types Data users Application developers Standards developers CDR administrators

10. ISO Open Forum 01/18/00VHA Metadata Registry10 VHA CDR – data classes Identifying and Definitional Attributes Basic attributes of data elements from ISO/IEC 11179 part 3 + sensitivity level Relational and Representational Attributes Basic attributes of data elements from ISO/IEC 11179 part 3 + business rules Data Steward AttributesData registry administrative attributes - ISO/IEC 11179 part 6 Technical Development AttributesPhysical characteristics of data instance – mapping extension Operational System AttributesSource operational system information – mapping extension Administrative AttributesData registry administrative attributes - ISO/IEC 11179 part 6

11. Populating the data registry CDR Administrators Business Analyst/SME Application Developers Data Standard Developers Production Version Production CDR Metadata Collection CDR Candidate Data Standards Process JAD Process Request Approval Logical Data Model Extracts from Data Dictionaries Missing Metadata Information

12. ISO Open Forum 01/18/00VHA Metadata Registry12 Data standardization process Submitting Organization Responsible Organization Approval Authority Draft Candidate Standard Corporate Data Registry

13. ISO Open Forum 01/18/00VHA Metadata Registry13 CDR menu – data element Query metadata Keyword System Responsible authority Data element name Ad hoc reports Download records

14. ISO Open Forum 01/18/00VHA Metadata Registry14 CDR menu – maintenance Add metadata Automated population via extracts from data dictionaries and data models Manual entry via JAD session Update metadata Version metadata Link standardized data with aliases Gather user feedback

15. ISO Open Forum 01/18/00VHA Metadata Registry15 CDR menu – JAD Reference information stored in registry Reconcile on-line discrepancies and vote Document results in centralized place, reuse JAD Session Leader Updates Information Participant

16. ISO Open Forum 01/18/00VHA Metadata Registry16 CDR menu – standardization Responsible Organization Pick list of data elements with status = “draft” Edit screen to verify/update data and change status to “candidate” Send for approval Approval Authority Pick list of of data elements with status = “candidate” Approve or reject

17. ISO Open Forum 01/18/00VHA Metadata Registry17 VHA CDR – current status Version 1.0 begins operation in Q1 2000 48 metadata attributes 210 standard data elements Estimated 3000 to 5000 data elements from operational systems (aliases)