1. www.friendlyfaces.org Lisa Pleasants-Smith From a Family Perspective Children’s Healthcare of Atlanta 17th Annual Cleft Lip and Palate Symposium July 22, 2004

2. www.friendlyfaces.org Lisa Pleasants-Smith A resource for, and network of, individuals with facial differences, parents, families, friends, and healthcare professionals

3. www.friendlyfaces.org Lisa Pleasants-Smith

4. www.friendlyfaces.org Lisa Pleasants-Smith

5. www.friendlyfaces.org Lisa Pleasants-Smith

6. www.friendlyfaces.org Lisa Pleasants-Smith NICU Coping Strategies 1. Acquiring information 2. Gaining Control (bonding) 3. Social Comparison

7. www.friendlyfaces.org Lisa Pleasants-Smith Early Intervention 1. Craniofacial Team 2. Audiology 3. Babies Can’t Wait, CMS, Georgia PINES

8. www.friendlyfaces.org Lisa Pleasants-Smith Advocacy Begins Proactive Parenting 1. Self-Education/Research 2. Networking

9. www.friendlyfaces.org Lisa Pleasants-Smith Ongoing Challenges Health/Medical Issues 1. Airway Management 2. Nutrition 3. Hearing 4. Craniofacial Surgery 5. Dental 6. Ophthalmology 7. Speech Therapy (Oral Motor and Articulation) 8. Home Health Nursing

10. www.friendlyfaces.org Lisa Pleasants-Smith Ongoing Challenges Education Issues 1. Preparation for Individualized Education Plans 2. Special Education/Hearing Impairment Program Options Oral/Speech American Sign Language (ASL) Total Communication (Oral and ASL) 3. Assistive Technology

11. www.friendlyfaces.org Lisa Pleasants-Smith Ongoing Challenges Social/Psychological Issues

12. www.friendlyfaces.org Lisa Pleasants-Smith Ongoing Challenges Health Insurance 1. Deeming Waiver 2. Health Insurance Premium Plan (HIPP) 3. Babies Can’t Wait 4. CMS 5. Medicaid Waivers

13. www.friendlyfaces.org Lisa Pleasants-Smith Ongoing Challenges Stress 1. Chronic 2. Affects Entire Family 3. Intervention—Counseling, Support Groups

14. www.friendlyfaces.org Lisa Pleasants-Smith Support 1. Continuing Education Internet Journal Articles and Books 2. Parent-to-Parent Networking Parent to Parent of Georgia Families of Children Under Stress (FOCUS) Mothers United for Moral Support (MUMS) Condition-Specific Listservs (e.g. Yahoo! Groups)

15. www.friendlyfaces.org Lisa Pleasants-Smith Essential Resources Charkins, H. (1996) Children with Facial Difference: A Parent's Guide. Bethesda: Woodbine House. The Resource Guide for People with Disabilities and their Families in Georgia published by the Governor's Council on Developmental Disabilities. Call 404-657-2126 for a copy. Families Of Children Under Stress (FOCUS) 3050 Presidential Drive, Suite 114, Atlanta, Georgia 30340 Phone: 770-234-9111 Web site: www.focus-ga.org

16. www.friendlyfaces.org Lisa Pleasants-Smith Thank You!