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MS-ID project Task Force on Major and Chronic Diseases Luxembourg, 19 th June 2007
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MS-ID aims: The development and piloting of a European Register on MS Activation and implementation of the European Code of Good Practice in MS
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MS-ID partner organisations Six participating MS societies – DMSG, Germany – MS Felag, Iceland – PTSR, Poland – SSMR, Romania – FELEM, Spain – MS Society, UK
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MS-ID key actors Steering Group Scientific Advisory Committee EMSP membership External stakeholders – Health policymakers from European Institutions and National Ministries (Health, Social Welfare, Labour), Health policy advisory Groups – National Sick Funds and Private Health Insurance companies – Neurologists and other medical experts – Paramedics – Researchers and academics – MS related Industry – Patient organisations
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MS-ID deliverables MS-ID Conference (29-30 May 2007) Evaluation report on different MS data collection methods currently operating Piloted model of European Register of MS Open Method of Coordination (OMC) annual reporting Consensus meeting (May 2009) Peer reviewed scientific paper
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Contact details Mairead OLeary MS-ID project co-ordinator mairead.oleary@emsp.org http://www.ms-id.org Christoph Thalheim EMSP General Secretary christoph.thalheim@emsp.org http://www.emsp.org
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