1. Overview of National Center for Health Statistics (NCHS) Data Systems Mary Burgess NCHS Librarian Mburgess@cdc.gov

2. NCHS IS THE NATION’S PRINCIPAL HEALTH STATISTICS AGENCY Provides fundamental public health and health policy statistics that meet the needs of a wide range of users Tracks changes in health and health care across the nation Provides mechanisms for obtaining consistent, uniform statistics

3. NCHS DATA USED FOR: Comparisons across populations, providers, and geographic areas Planning/assessing public health programs Identifying health problems, risk factors, and disease patterns To contribute to product planning and market research

4. Section 308(d), Public Health Service Act Freedom of Information Act Privacy Act DATA CONFIDENTIALITY How NCHS Protects Privacy Legal Provisions that protect NCHS respondents:

5. NCHS PRIVACY SAFEGUARDS Blocks outside access to confidential information stored in NCHS computers. Requires nondisclosure affidavit. Data files are routinely cleaned of anything that could directly identify a person or firm. Any personal information release requires the approval of the Center’s Director Confidentiality training for all staff. Random inspections by the NCHS Confidentiality Officer.

6. MAJOR DATA SYSTEMS National Vital Statistics System and surveys National Health Interview Survey National Health and Nutrition Examination Survey National Health Care Surveys

7. NATIONAL VITAL STATISTICS SYSTEM http://www.cdc.gov/nchs/nvss.htm

8. RELATED SURVEYS Linked Birth and Infant Death Data Set Monitors and explores the complex interrelationships between infant death and risk factors present at birth. National Maternal & Infant Health Survey Tracks factors associated with low birthweight

9. National Mortality Followback Survey Studies the etiology of disease, demographic trends in mortality, and other health issues. National Death Index F acilitates epidemiologic followup studies Verification of death for individuals under study RELATED SURVEYS

10. NATIONAL HEALTH INTERVIEW SURVEY http://www.cdc.gov/nchs/nhis.htm

11. Evaluation of immunization status of preschool population National Immunization Survey RELATED SURVEYS

12. Studies conception and sterilization, teenage sexual activity and pregnancy; family planning and unintended pregnancy; adoption; breastfeeding, infertility; and event histories. National Survey Of Family Growth RELATED SURVEYS

13. Provides quick turnaround data on a variety of broad health and welfare- related issues State & Local Area Integrated Telephone Surveys RELATED SURVEYS

14. National Survey of Children with Special Health Care Needs Studies children with special needs National Asthma Survey Studies Asthma prevalence, management, and medication use RELATED SURVEYS

15. NATIONAL HEALTH AND NUTRITION EXAMINATION SURVEY http://www.cdc.gov/nchs/nhanes.htm

16. NATIONAL HEALTH CARE SURVEYS http://www.cdc.gov/nchs/nhcs.htm

17. National Hospital Discharge Survey Provides detailed data on patient characteristics and length of hospital stay Provides info on diagnosis, and surgical and diagnostic procedures. RELATED SURVEYS

18. National Survey Of Ambulatory Surgery Provides data on patient characteristics. Information on diagnosis and the surgical and diagnostic procedures performed. RELATED SURVEYS

19. Provides data on characteristics of patients’ visits including information on patient characteristics, diagnostic procedures, patient management, and planned future treatment. National Ambulatory Medical Care Survey RELATED SURVEYS

20. National Hospital Ambulatory Medical Care Survey Characteristics of patients’ visits to hospital outpatient departments (OPD) and emergency departments Diagnosis and treatments RELATED SURVEYS

21. Characteristics of residents in nursing homes Functional status of nursing home residents Number of people discharged from nursing homes Characteristics of nursing homes themselves National Nursing Home Survey RELATED SURVEYS

22. National Home And Hospice Care Survey Number and functional status of patients Number of patients discharged. Characteristics of home health agencies, hospices and their patients RELATED SURVEYS

23. Develops and tests NCHS data collection instruments. Supports methodological research on questionnaires and response Questionnaire design research program Office Of Research And Methodology Other NCHS Activities

24. Allows access to data that would not be usually be permissible to analyze because of confidentiality and disclosure regulations. Research Data Center Other NCHS Activities

25. Data Users Conference Opportunities for the discussion of technical and philosophical issues Forum for the sharing of information from Federal, State, and local governments, as well as from universities and professional associations Other NCHS Activities

26. International Collaboration Maintains health statistics programs with developed and developing countries around the world Sponsors international meetings and symposiums Contributes to other international forums through scientific articles and presentations Other NCHS Activities

27. DATA DISSEMINATION NCHS Survey Data Are Presented In A Variety Of Publication Formats: Published Reports Journal Articles Chartbooks Electronic Products

28. PUBLISHED REPORT SERIES Vital & Health Statistics Series Advance Data Reports National Vital Statistics Reports Health, United States Chartbooks Miscellaneous Reports Available In Printed & Electronic Formats:

29. HEALTH, UNITED STATES Annual Report on the Nation’s Health Published in conjunction with a different special topics chartbook each year Available In Printed & Electronic Formats

30. JOURNAL ARTICLES NCHS staff, individually and collaboratively, publish throughout the year in a variety of statistical and medical journals and newsletters. A bibliography is available online at the NCHS website.

31. MISCELLANEOUS PUBLICATIONS Healthy People 2000/2010 America’s Children ICE on Injuries Atlas of Mortality Chartbooks Reports to Congress CASM Proceedings International Health Reference Guide Available In Printed & Electronic Formats

32. ELECTRONIC PRODUCTS Extensive Program Of Microdata Release Through Electronic Media Including: Internet http://www.cdc.gov/nchs/http://www.cdc.gov/nchs/ CD-ROMS with statistical software CD-ROMS with text retrieval software Public use data on CD-ROM

33. OTHER OPPORTUNITIES FOR SPREADING THE WORD University lectures and seminars Data system and special topic seminars Presentation of research findings at annual association meetings, conferences, workshops, and symposiums Staffing of exhibit booths at annual meetings and conferences Ad hoc visits to assist in unique problem solutions

34. WHAT CAN I FIND ON THE WEBSITE? FastStats Press and data releases Links to other health & statistical agencies and organizations Published Products Microdata Coming Events e-mail link for specific questions

35. National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION THANK YOU FOR COMING Visit NCHS on the WEB http://www.cdc.gov/nchs/