1. Development of a new self-report instrument on participation and environment With Ros Madden & Professor Anita Bundy Danielle Cheeseman

2. Outline ›1) Review of literature ›2) Development of YIPE ›3) Study overview, results and future recommendations 2

3. 1) Review of literature ›Self-report increasingly advocated 1,2 ›ICF provides a framework for the development of self-report instruments ›ICF acknowledges the environment as a key contributor to participation 3 3

4. 4 ABSENCE OF INSTRUMENTS THAT ARE: Generic (vs. condition specific) Self-report Measure participation- environment relationship DEVELOPMENT OF YIPE Review of literature

5. 2) Development of YIPE ›YIPE: Your Ideas About Participation and Environment ›Generic, self-report instrument ›Enables a person to record their own assessment of overall functioning ›Developed from the Australian national data standards 4 ›Includes items from all “activities and participation” and “environmental factors” ICF chapters ›Questions start with “satisfaction with participation” and move to related environmental factors 5

6. Overview of study ›Qualitative study ›10 people from disability organisations ›Aim: examine the evidence for the content validity of the YIPE, including meaningfulness, acceptability and usefulness ›2 rounds of interviewing ›YIPE revised and converted to computer format 6

7. 3) Study results ›Empower service users ›Develop person-centred goals ›Useful being split into two related areas on participation and environment ›Holistic approach ›Assist with communication between health professionals ›Content and format well accepted by participants ›Useful assessment tool for preparation, during therapy, evaluation ›Importance of self-report 7 Benefits of the YIPE:

8. Quotes ›“Well I thought that because it was self directed that it was very respectful of me and I liked that” ›“I liked the fact that it was very open language and very non-judgmental... It's quite empowering in a way” ›“A more full, rounded appreciation of a person's daily life” ›“To really concentrate on what you really want to do. Otherwise you go in then they'll hit you with a questionnaire like this and off the cuff you're going to have to answer them. That could be you for the next 5 years, because that's what you said you wanted. But if you've got something that you can have a look at and prompt yourself to what you really want to do, yeah that'd be good.” 8

9. Future research ›Psychometric properties of the YIPE ›Increasing sample size and diversity (people with cognitive impairments) ›Obtaining the professional’s view ›Trialling the YIPE at different stages in the therapy process ›Trialling accessible formats of the YIPE (e.g., vision impairments) 9

10. Summary ›Lack of existing instruments that are self-report, generic and measure participation and its relationship to the environment ›This has led to the development of a new self-report instrument, YIPE ›Findings support the meaningfulness, acceptability and usefulness of the YIPE and its potential for promoting person-centred care and the empowerment of service users. 10

11. References ›1. MacDonald C. Self-assessment models, practice and tools within disability support services [Internet]. New Zealand: Ministry of Health; 2010. Available from: http://www.moh.govt.nz/moh.nsf/Files/disability/$file/dss-self-assessment-models-practice- tools.pdf Accessed 2011 Aug 10 ›2. Griffiths P, Harris R, Ullman R. Self assessment of health and social care needs by older people: A multi-method systematic review of practices, accuracy, effectiveness and experience [Internet]. London: National Co-ordinating Centre for NHS Service Delivery and Organisation R&D (NCCSDO); 2005. Available from: http://www.sdo.nihr.ac.uk/files/project/30-final-report.pdf Accessed 2011 Aug 11 ›3. World Health Organization. International classification of functioning, disability, and health: ICF. Geneva: World Health Organization; 2001. ›4. National Community Services Data Committee. National community services data dictionary[Internet]. Version five. Cat. no. HWI 102. Canberra: Australian Institute of Health and Welfare. 2008. Available from: http://www.aihw.gov.au/publications/hwi/ncsddv5/ncsddv5.pdf Accessed 2011 Aug 26 11