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Published byIsaac Cahill Modified over 11 years ago
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Jacob B Weiss, PhD 4/24/2009 CanConnect.org Department of Biomedical Informatics, Vanderbilt University
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Catch It Early
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Themes from Summit Day 1 Collaboration Community-based participatory research Cancer survivorship Awareness of community resources Emerging Web Technologies?
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Cancer as a Chronic Illness Diagnosis Treatment Survivorship
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Community-Based Support Inpatient Clinic Team Outpatient Community Support
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Clinical Care Team Clinical Care Team Patients and Families Local Community Support Institute of Medicine (IOM). Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. Washington, DC: The National Academies Press, 2007 Gustafson DH, Hawkins RP, et al. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. International Journal of Medical Informatics. 2002;65(3): 169-177.
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Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Local cancer-related calendar & news blog Local resource listings (tagged by keywords) Design of the Online Community www.canconnect.org
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Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Patient-to-patient mentorship connection Social networking profiles Design of the Online Community www.canconnect.org
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Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Private community partner forum Design of the Online Community www.canconnect.org
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Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Stories shared emphasize life lessons and humor Focus on community support resources and partners Design of the Online Community www.canconnect.org
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Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Google map to visualize support organizations Searchable archive of local events, news, program contacts Design of the Online Community www.canconnect.org
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Awareness Connecting Collaboration Community & Survivorship Focus Knowledge Management Underserved Populations Increase visibility through shared stories and relevant resources Design of the Online Community www.canconnect.org
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A Home To Share
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A Home To Celebrate and Recognize
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Provide Access To Information
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Synthesize and Filter Windows into the Community
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Listen and Participate The Pulse of the Community
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www.twitter.com/canconnect
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www.youtube.com/canconnect
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Partner Supporting Community Activities
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As wonderful as the web is, this kind of philosophical commitment to each other has to take place at least initially in person.
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