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Ruth Wyn Williams Darlithydd y Coleg Cymraeg Cenedlaethol ym maes nyrsio a nyrsio anabledd dysgu, Ysgol Gwyddorau Gofal Iechyd, Prifysgol Bangor. Coleg Cymraeg Cenedlaethol lecturer in nursing and learning disability nursing, School of Healthcare Science, Bangor University. r.w.williams@bangor.ac.uk 1
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3 dewis neu gontinwwm? 3 choices or a continuum? 1. Ymchwil gyfranogol 2. Ymchwil rhyddfreiniol 3. Ymchwil cynhwysol 1. Participatory research 2. Emancipatory research 3. Inclusive research 2
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Ymchwil cynhwysol Inclusive research ‘must address issues which really matter to people with learning disabilities, and which ultimately leads to improved lives for them’, ‘must access and represent their views and experiences’, and reflect ‘that people with learning disabilities need to be treated with respect by the research community’ (Walmsley & Johnson, 2003: 16). 3
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Tystiolaeth:ymchwil cynhwysol Evidence: inclusive research Cwestiynau ymchwil perthnasol Dulliau casglu data pwrpasol Dadansoddiad cynhwysfawr o’r data Lledaenu canfyddiadau'r astudiaeth yn well Relevant research questions Appropriate data collection methods Comprehensive analysis of data Better dissemination of study findings (Garbutt et al. 2009;Tuffrey-Wijne & Butler 2009; Bigby & Frawley 2010; Kramer et al. 2010; Turk et al. 2012; O’Brien et al. 2014). 4
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Y neges graidd Core message 5
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Y dechrau The start
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Pwy di pwy / Who’s who 7
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Sialens / Challenges Amser i sefydlu a meithrin ymddiriedaeth a pherthnasoedd gwaith effeithiol. Cyflogi? Ystyriaethau ymarferol fel sicrhau hygyrchedd (yn gorfforol ac o ran mynediad i wybodaeth) Mae ymchwil cyfranogol yn gofyn am lawer o amser os am sicrhau cyfranogiad gweithredol. Addasu systemau - rôl weithredol yn y broses Pwy sy’n elwa? Time, Payment, Practical issues, Active contribution=Time, Adapt, Who’s benefit? 8
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Meddwl am y cwestiwn mawr Thinking about the big question 9
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Bwyta’n iach Healthy eating 10
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Debbie 11
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Llwyddiannau Success Cyd weithio Hyder Blaenoriaethu Aelodau newydd Cyflwyno Cwrs hawdd i ddarllen Darllen papurau ymchwil Hunaniaeth grŵp Working together Confidence Priorities New members Conference presentation Easy read course Read research papers Become a group / identity 12
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Sialensiau Challenges Ymrwymiad Ymchwil Dysgu gan eraill Arddangos ein gwaith Cyflwyniad Dylanwadu eraill Dweud wrth bobl be da ni yn ei wneud Commitment Research Learn from others Show what we’ve done Presentation Influence others Tell others about us 13
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SuccessChallenges HopesMotto Commitment Research Learn from others Show what we’ve done Presentation Influence others Tell others about us Working together Confidence Priorities New members Conference presentation Easy read course Read research papers Become a group / identity Achieve our aims Move on up Learn about healthy eating “It doesn’t matter whether we have a disability we are all different and everyone needs to be accepted for who we are inside and out” Keep going / smile Question-Aires May 2013 14
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Arwyddeiriau’r Holiad-Uron The Question-Aires motto “It doesn’t matter whether we have a disability we are all different and everyone needs to be accepted for who we are inside and out” Keep going/smile 15
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Ruth Wyn Williams Darlithydd y Coleg Cymraeg Cenedlaethol ym maes nyrsio a nyrsio anabledd dysgu, Ysgol Gwyddorau Gofal Iechyd, Prifysgol Bangor. Coleg Cymraeg Cenedlaethol lecturer in nursing and learning disability nursing, School of Healthcare Science, Bangor University. r.w.williams@bangor.ac.uk 16
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Cyfeiriadau / References Bigby C. & Frawley P. (2010) Reflections on doing research in the “Making Life Good in the Community” study. Journal of Intellectual & Developmental Disability 35, 53–61. Garbutt R., Tattersall J., Dunn J. & Boycott-Garnett R. (2009) Accessible article: involving people with learning disabilities in research. British Journal of Learning Disabilities 38, 21–34. Kramer J. M., Kramer J. C., Garcia-Iriarte E. & Hammel J. (2010) Following through to the end: the use of inclusive strategies to analyse and interpret data in participatory action research with individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 24, 263–273. O’Brien P., McConkey R. & García-Iriarte. (2014) Co-researching with people who have intellectual disabilities: insights from a national survey. Journal of Applied Research in Intellectual Disabilities 27, 65–75 Tuffrey-Wijne I. & Butler G. (2009) Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis. Health Expectation 13, 174– 184. Turk V., Leer G., Burchell S., Khattram S., Corney R. & Rowlands G. (2012) Adults with intellectual disabilities and their careers as researchers and participants in RCT. Journal of Applied Research in Intellectual Disabilities 25, 1–10. Walmsley, J. & Johnson, K. (2003). Inclusive research with people with learning disabilities: Past, present and futures. London: Jessica Kingsley. Wenger E. (1998) Communities of Practice: Learning, Meaning and Identity. Cambridge University Press, Cambridge 17
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