1. Got Healthcare? Important tools and resources for successful youth to adult health care and management Stephanie Hood, B.A. – Transition Coordinator Meredith Pyle – Title V CSHCN Specialist Maryland Office for Children with Special Health Care Needs

2. Health Care Transition is: Health care transition is helping young people with special health care needs plan their move from the child-centered health care system to the adult- centered health care system. Some ways that this is done include: – Youth’s current doctors and health care providers discussing the youth’s changing health care needs as they become an adult and eventually seeing adult providers – Doctors and other health care providers encourage youth’s development of self-management skills and knowledge – Families, youth, and providers working together on a written Transition Plan(s)

3. Some quick facts… Many Maryland families report that their YSHCN do not receive the services they need to successfully transition to health care, work, and independence. – In 2006 only 37.4 %; Maryland ranked 42 nd (NS-CSHCN) YSHCN ages 12-17 whose families report that…Maryland %Nation % doctors and other health care providers have discussed eventually seeing providers who treat adults 10.811.9 doctors and other health care providers have discussed youth’s health care needs as he/she becomes an adult 46.546.2 doctors and other health care providers usually or always encourage development of self- management skills and knowledge 75.478.0

4. Transition Planning Developing a transition plan for YSHCN is an important tool in the process of moving to adulthood Including health care in the transition plan, or developing a separate health care transition plan with care providers, is crucial. Health care transition planning should be done by youth, families, and providers.

5. Transition Planning Resources for Youth

6. 1.http://www.gottransition.org/youth-resourceshttp://www.gottransition.org/youth-resources 2.http://healthytransitionsny.org/skills_media/tool_showhttp://healthytransitionsny.org/skills_media/tool_show 3.http://cshcn.org/planning-record-keeping/teen-care- notebookhttp://cshcn.org/planning-record-keeping/teen-care- notebook

7. Transition Planning Resources for Parents and Families 1.http://www.gottransition.org/families-informationhttp://www.gottransition.org/families-information 2.http://www.waisman.wisc.edu/wrc/pdf/pubs/TAHC.pdfhttp://www.waisman.wisc.edu/wrc/pdf/pubs/TAHC.pdf 3.http://new.dhh.louisiana.gov/assets/docs/OCDD/publicatio ns/EmergencyPreparednessTheTakeandGoEmergencyBook. pdfhttp://new.dhh.louisiana.gov/assets/docs/OCDD/publicatio ns/EmergencyPreparednessTheTakeandGoEmergencyBook. pdf

8. Transition Planning Resources for Providers 1.http://www.communityinclusion.org/pdf/man8.pdfhttp://www.communityinclusion.org/pdf/man8.pdf 2.http://web.syntiro.org/hrtw//index.htmlhttp://web.syntiro.org/hrtw//index.html 3.http://www.gottransition.org/providers-best- practiceshttp://www.gottransition.org/providers-best- practices

9. Questions? For questions or additional information, contact: Stephanie Hood, Transition Coordinator at Maryland’s Office for Genetics and Children with Special Health Care Needs at shood@dhmh.state.md.us or 410-767-5298 shood@dhmh.state.md.us