1. National Center for the Dissemination of Disability Research “Welcome to the New NCDDR” May 31, 2006

2. 2 NIDRR’s Long-Range Plan and Knowledge Translation Program Art Sherwood, PhD Ellen Blasiotti NCDDR Scope of Work John D. Westbrook, PhD NIDRR Researcher Collaborators NCDDR Website Joann Starks NCDDR Collaborating Partners: An Overview Frank Martin

3. 3 NIDRR’s Long-Range Plan and Knowledge Translation Program Art Sherwood, PhD Ellen Blasiotti National Institute on Disability and Rehabilitation Research U.S. DEPARTMENT OF EDUCATION

4. Policy Practice Behavior System Capacity NIDRR Logic Model: Planning for Research Outcomes Eliminate disparities between people with disabilities and the general population in:  employment,  participation & community living and  health and function. Situation: Significant gaps exist in knowledge, skills, policy, and practice and system capacity that prevent people with disabilities from having equal access to opportunities for employment, health and function, and participation. Long-term Outcome Arenas – Changes in Overall Conditions Short Term Outcome Arenas – Advances in Understanding, Knowledge, Skills, and Learning Systems via: Intermediate Outcome Arenas – Adoption and Use of New Knowledge Leading to Changes/ improvements in: Major Domains of NIDRR Research Contextual Factors: Variable funding; scientific and technological advancements; societal attitudes; economic conditions; changing public policies; coordination and cooperation with other government entities. Performance Assessment & Outcomes Evaluation Intended Beneficiaries Intermediate Beneficiaries People with disabilities & family members Researchers Clinicians Service providers Educators Policy experts Federal & non- federal partners Industry reps & product developers Employers Media Consumer advocates People with disabilities & family members R&D C-BKT Discoveries Interventions, Products, Devices, & Environmental Adaptations Theories, Measures, & Methods 05/05/05

5. 5 National Center for the Dissemination of Disability Research Scope of Work John D. Westbrook, PhD

6. 6 NCDDR Staff Members Project Director: John D. Westbrook, PhD Program Associate: Joann Starks Program Associate: Frank Martin Program Associate: Kathleen Murphy, PhD Information Specialist: Lin Harris Web Administrator: John Middleton Web Production Artist: Magda Acuña

7. 7 Highlights of NCDDR Scope of Work Focusing on Services that Facilitate Building of capacity of NIDRR researchers to negotiate the knowledge translation (KT) process Increasing inclusion of NIDRR-sponsored research in systematic reviews Improving consumers' access to and use of disability and rehabilitation research

8. 8 Implications of New KT Paradigm Definition of KT KT is defined as the exchange, synthesis, and ethically-sound application of knowledge — within a complex set of interactions among researchers and users — to accelerate the capture of the benefits of research through improved health, more effective services and products, and a strengthened health care system. Adapted from the Canadian Institutes of Health Research (CIHR)

9. 9 NCDDR Service Areas Research Quality Development Dissemination Technical Assistance Utilization Effectiveness

10. 10 Research Quality Services Quality and Alignment of Research Design  Research questions(s) and research design (assessment)  Type of new knowledge to be developed Standards of Evidence  Implications for existing research efforts and to-be-proposed work

11. 11 Research Quality Services (continued) Evidence-based Guidelines  For use in conducting systematic reviews  For use in clarifying roles, responsibilities, targets of NIDRR researchers Research Registration and Reporting  Inclusion in registries  Change in reporting Low Cost/No Cost Modifications

12. 12 Development Services Reporting Standards  Research reports vs. journal articles  CONSORT, STARD, QUORUM Disability Research Reporting Facilitator  Web-based supports/guides

13. 13 Dissemination Services Information Resources  Increase awareness/understanding about KT Library of KT Resources and Strategies  Web-based resources Accessing Systematic Reviews  Search assistance

14. 14 Registry of NIDRR-Sponsored Research  Heighten profile of NIDRR-supported research results Online Instructional Modules  Useful in planning or reviewing new research designs Registry of Syntheses and Evidence-based Systematic Reviews  Produced by NIDRR grantees Dissemination Services (continued)

15. 15 Community of Practice on Research Quality Community of Practice on Outreach to Diverse Audiences FOCUS Publications Web Site Webcasts Dissemination Services (continued)

16. 16 Technical Assistance Services On-site technical assistance Off-site technical assistance Toll-free telephone Workshops

17. 17 Proposal reviewer resources  Characteristics of research quality  Module Systematic review training  Campbell Collaboration – electronic and teleconference Technical Assistance Services (continued)

18. 18 Utilization Effectiveness Services Support for Conducting Systematic Reviews and Evidence-based Systems  Direct assistance to those conducting systematic reviews Evidence/Product Grading System  Disclosure for public dissemination and utilization

19. 19 Consumer Resources  Most effective communication and resource systems Evidence-Based Technology  Merging evidence-based information in technology engineering and transfer Utilization Effectiveness Services (continued)

20. 20 Knowledge Translation Planning Committee Standards and Research Review Board Consensus Building Strategies with NIDRR Grantees Joann Starks

21. 21 Southwest Educational Development Laboratory (SEDL) Wesley Hoover, President and CEO Disability Research To Practice Program John D. Westbrook, Program Manager National Center for the Dissemination of Disability Research (NCDDR) John D. Westbrook, Director Task Force on Systematic Review and Guidelines Marcel Dijkers, Facilitator Joann Starks, NCDDR Liaison Task Force on Knowledge Translation and Knowledge Value Mapping Juan Rogers, Facilitator Frank Martin, NCDDR Liaison Task Force on Standards of Evidence and Methods Mark Johnston, Facilitator John Westbrook, NCDDR Liaison NCDDR Standards and Research Review Board John D. Westbrook, Facilitator Knowledge Translation Planning Committee John D. Westbrook, Facilitator Community of Practice on Outreach to Diverse Audiences Frank Martin, Facilitator Community of Practice on Research Quality Joann Starks, Facilitator National Center for the Dissemination of Disability Research (NCDDR) Organizational Chart for Major Responsibilities

22. 22 Knowledge Translation Planning Committee Will provide guidance to the NCDDR and NIDRR staff regarding supports and services to strengthen the quality of NIDRR’s KT Program. NCDDR staff will work closely with NIDRR- funded KDU and KT projects to incorporate their work into larger scale efforts in guideline production.

23. 23 To help in identifying needs  Suggesting transition resources and supports  Describing information dissemination and utilization conduits appropriate for the development of NIDRR’s KT Program The KT Planning Committee will draft position statements:

24. 24 John Westbrook, PhD, will serve as facilitator Electronic discussion list exists Committee will meet in person annually Committee will meet via teleconference monthly/ bimonthly Logistics

25. 25 Katherine Belknap ABLEDATA ORC Macro Marianne Farkas, ScD, Innovative KDU for Disability and Professional Organizations and Stakeholders, Boston University/Sargent College Mark X. Odum, National Rehabilitation Information Center (NARIC), HeiTech Services Members of KT Planning Committee:

26. 26 Joe Lane RERC on Technology Transfer (T 2 RERC) University at Buffalo, The State University of New York John H. Stone, PhD, Center for International Rehabilitation Research Information and Exchange (CIRRIE-2), University at Buffalo, The State University of New York Members (continued)

27. 27 Standards and Research Review Board Will provide guidance and review in establishing standards of evidence for research Uses a consensus-building approach to ensure the rigor and quality of standards as well as the buy-in necessary for their actual use.

28. 28 Three Task Forces: Standards of Evidence and Methods Systematic Review and Guidelines Knowledge Translation and Knowledge Value Mapping

29. 29 Logistics John Westbrook, PhD, will serve as facilitator Electronic discussion list will be established Board will meet in person annually Board will meet periodically via teleconference

30. 30 Board Members include NIDRR-funded researchers representing: 3 RERCs 6 RRTCs 2 TBI Model Systems 1 each: SCI Model Systems, Burn Model Systems, Field Initiated Projects, Advanced Rehabilitation Training, and ADA/IT Centers

31. 31 Members of the Standards and Research Review Board Matthew H. Bakke, PhD, RERC on Hearing Enhancement, Gallaudet University Marcel Dijkers, PhD, Mt. Sinai SCI Model System and a Longitudinal Study of Psychosocial Outcomes and Subjective Quality of Life Many Years After Traumatic Brain Injury; Mount Sinai School of Medicine Charles Drum, PhD, Northwest ADA/IT Center (Disability Business Technical Assistance Center - Region X), Oregon Institute on Disability and Development, Oregon Health & Science University Steve Gard, PhD, RERC on Prosthetics and Orthotics, Northwestern University

32. 32 Members (continued) Wayne A. Gordon, PhD, RTC on TBI Interventions and New York TBI Model System, Department of Rehabilitation Medicine, Mount Sinai School of Medicine Allen W. Heinemann, PhD, ABPP, RRTC on Measuring Rehabilitation Outcomes and Effectiveness, Rehabilitation Institute of Chicago, Northwestern University Mark V. Johnston, PhD, Advanced Rehabilitation Effectiveness Research Training Center on Outcomes and Intervention, and TBI National Data Center, Kessler Medical Rehabilitation Research & Education Corp.

33. 33 Members (continued) Dennis C. Lezotte, PhD, UCHSC Burn Model System Data Coordination Center (BMS/DCC), University of Colorado Health Sciences Center Craig M. McDonald, MD, RRTC in Neuromuscular Diseases (RRTC/NMD), University of California-Davis Dennis C. Moore, EdD, RRTC on Substance Abuse, Disability, and Employment, Substance Abuse Resources and Disability Issues (SARDI), Wright State University, School of Medicine

34. 34 Juan Rogers, PhD, Director, Research Value Mapping Program, Georgia Institute of Technology; RERCs on Mobile Wireless Technologies for Persons with Disabilities, Wheeled Mobility and Workplace Accommodations Dave Vandergoot, PhD, RRTC on Improving Employment Outcomes, Hunter College of CUNY Gregg C. Vanderheiden, PhD, RERC on Telecommunications Access, RERC on Universal Interface and Information Technology Access, University of Wisconsin-Madison, and Glen W. White, PhD, RRTC on Full Participation in Independent Living, Schiefelbusch Institute for Life Span Studies, University of Kansas Members (continued)

35. 35 Task Force on Standards of Evidence and Methods Mark V. Johnston, PhD, Facilitator John Westbrook, PhD, NCDDR Liaison

36. 36 Standards of quality for research addressing each of the three stages of knowledge development identified by NIDRR Standards of evidence for the systematic review of disability and rehabilitation research The task force on standards of evidence and methods will develop and present to the Board draft consensus/position statements regarding:

37. 37 Activity 1.1 Establish collaborative mechanisms for developing standards of evidence and other supports for developing evidence-based knowledge. Activity 1.2: Identify existing standards of evidence and assess their applicability to NIDRR- sponsored research. Activity 1.3: Facilitate the development and refinement of standards of evidence for NIDRR-sponsored research. The task force on standards and methods will address:

38. 38 Task Force on Systematic Review and Guidelines Marcel Dijkers, PhD, Facilitator Joann Starks, NCDDR Liaison

39. 39 Develop and present to the Board draft consensus/position statements regarding recommended strategies for conducting systematic reviews in disability and rehabilitation research Review examples and components of guidelines produced in disability-related areas in order to suggest structures and components for developing additional guidelines derived from disability and rehabilitation research. The task force on systematic review and guidelines will:

40. 40 Activity 4.1: Facilitate the identification, development, and dissemination of guidelines for disability and rehabilitation practices and programs drawn from evidence produced through systematic reviews. The task force on systematic review and guidelines will address:

41. 41 Task Force on Knowledge Translation and Knowledge Value Mapping Juan Rogers, PhD, Facilitator Frank Martin, NCDDR Liaison

42. 42 KVM in relation to moving scientific evidence into policy and practice Use of the concept of knowledge value communities (KVC) in dissemination and utilization of systematic reviews The task force on knowledge translation (KT) and knowledge value mapping (KVM) will develop and present to the Board draft consensus/position statements and recommendations regarding:

43. 43 Considerations of “driving” and “restraining” forces in moving NIDRR-sponsored research results into public policy Needs for evidence grading to be responsive to NIDRR’s desire to address end-users with limited scientific training Knowledge mapping standards appropriate for each of NIDRR’s targeted stages of knowledge development

44. 44 NCDDR Web Site and Resource Highlights Joann Starks

45. 45 www.ncddr.org

46. 46 Library of Knowledge Translation Resources and Strategies  Multi-media  Evidence-based materials  NCDDR FOCUS/Updates NCDDR will develop and maintain several Web-based resources and services:

47. 47 Registry of Systematic Reviews  Searchable  NIDRR researcher authorships  Summaries, digests, reports also included Registry of NIDRR-Sponsored Research  NIDRR Research Studies  Searchable by relevant components: for example: research questions, research design, sample characteristics

48. 48 Evidence-based Registries and Databases  Portal to variety of resources Communities of Practice  Forums, Online meetings  Teleconferences and Webcast events  Archives Needs Sensing Activities and Reports  Restricted access as needed  Data gathering for specific audiences

49. 49 Research Report Facilitator  Based on type of research design, suggestion for report components/content Tools and Guides  Research Instrumentation  Guides and Guidelines

50. 50 Webcasts  Calendar  Archives Workshops  Registration  Archives Technical Assistance Services  Request  Online TA and Training Events

51. NCDDR Collaborating Partners: An Overview Frank Martin

52. 52 Campbell Collaboration (C2) What is Campbell Collaboration? C2 Goals and Activities Anticipated Partnership Roles & Contribution  Disability Research Collaborating Group  Online training  Onsite training  Involve NIDRR researchers in Campbell reviews Key Personnel  Brian Cobb, PhD  Chad Nye, PhD

53. 53 Cochrane Collaboration What is Cochrane Collaboration? Cochrane Activities - Cochrane Library Anticipated Partnership Roles & Contribution  Disability & Rehabilitation Field Group  Involve NIDRR investigators in Cochrane reviews  Training for Health and Function research area Key Personnel  Rob de Bie, PhD  Kay Dickersin, PhD  Lisa Bero, PhD

54. 54 National Guideline Clearinghouse Rationale for the NGC Role of Evidence-based Practice Guidelines Anticipated Partnership Roles & Contribution  Registry development  Expertise on KT and guideline development Key Personnel  Mary P. Nix

55. 55 National Rehabilitation Information Center NARIC Structure and Function Anticipated Partnership Roles & Contribution  Evidence grading system for products Key Personnel  Mark Odum

56. 56 Independent Living Research Utilization What is ILRU? ILRU and the Disability Community Anticipated Partnership Roles & Contribution  Webcasts Key Personnel  Lex Frieden

57. 57 RTC on Traumatic Brain Injury Interventions RTC’s Scope of Work Systematic Review Project Anticipated Partnership Roles & Contribution  Identify research design modifications Key Personnel  Wayne Gordon, PhD

58. 58 Pimjai Sudsawad, PhD Mary E. Switzer Fellow Assistant Professor, University of Wisconsin, Madison Research Focus: Knowledge Utilization Process and Strategies  Social Validation Model Anticipated Partnership Roles & Contribution  Identify and test knowledge dissemination and utilization strategies  Effectiveness of plain language summaries

59. 59 Ralf Schlosser, PhD Mary E. Switzer Fellow Associate Professor, Northeastern University, Boston Augmentative and Alternative Communication  Systematic review experience  Conceptual framework for systematic review Anticipated Partnership Roles & Contribution  Translating the EB on assistive/adaptive devices  Bridging the gap: Systematic reviews and rehabilitation engineering research