1. Bermuda Triangle Magic Triangles………

2. Rules of procedures European Congress ECE Regional Organisation Education Quality - Availability of Care / AEDs Scientific cooperation / Research Communication Finances Commission on European Affairs Report on Activities (July 2006)

3. European Congresses on Epileptology ECE Oporto 1994 Den Hague 1996 Warsaw 1998 Florence 2000 Madrid 2002 Vienna 2004 Helsinki 2006 Berlin 2008 ?? 2010 ?????? 2012 Post Congress Satellite in St Petersburg Co-organisation Germany / Israel in Berlin 2008

4. Travel Bursaries for ECE: 2002-2004-2006 # 50 Travel bursaries per ECE Criteria: Working in a European Institution Under 40 years First author of an accepted abstract Includes: -Complimentary Registration -3 Nights Accommodation -€250 towards travel

5. CEA Residential Courses Teaching Courses Education: CEA Action Plan Distant Education Trainer’s courses Lusophone edu Francophone edu Edu for PAMs Etc…..

6. Year20062007200820092010 ? Residential Course Eilat Migrating Course SerbiaLithuania San Servolo International ILAE CEA Co- financing ? CEA Residential Courses Teaching Courses Education: CEA Action Plan

7. Discussion group with the European Medecine Agency Status Epilepticus: –Workshop on European Guidelines for the treatment of SE (London, April 2007 ) –EFNS Main Session in Brussels (August 2007) Rare Diseases Task Force in liaison with the EU Commission / Orphan Drug Programmes In Liaison with the ILAE Commission on Therapeutic Strategies Quality / Availability of Care / AEDs

8. Collaboration with the Rare Diseases Task Force in liaison with the EU Commission –Identifying the epileptic disorders that fulfill the definition of rare diseases Ex: epileptic encephalopathies, PME, Rasmussen, etc –Developing the concept of Centres of Reference –Communication actions (website, database ORPHANET, Journal or Rare diseases) –Optimizing the continuity of care between paediatrics and adult neurology units –Promoting innovative therapies / Orphan drugs

9. Tuesday July 4th 07.30-09.00 Orphan Drug Symposium The concept of rare or orphan diseases in epilepsy Baulac, M (France) Review of the EU orphan drug program - applicability to epileptic diseases S. del Signore (EMEA Representative) Overview of brivaracetam for progressive myoclonus epilepsies (UCB) von Rosenstiel, P (Belgium) Overview of stiripentol for SMEI (Biocodex) Chiron, C (France)

10. + Kyrg Stimulate Integration Support collaborative projects, regional or sub-regional initiatives Taking into account the local economical realities and the needs of the countries with limited resources Regional Organisation

11. + Kyrg

12. Supportive role in large scale collaborative studies –EURAP (pregnancy registry) –EU calls for Research (FP 6 th, FP 7 th ) Participation to the FONDE study (EUCARE) AEDs Trials? Genetics, Epidemiology, Tissue banks Fellowships? Scientific Cooperation / Research

13. ILAE website EUCARE (Action at the EU Parliament) Global Campaign Societies (EFNS, EPNS) IBE Communication Communication with the Chapters Reinforce the role of: the European Advisory Concil (EAC) the Chapter Convention

14. CEA Bursaries for Chapter Conventions Initiated in Vienna in 2004 to ensure participation of Chapter Delegates in the European Chapter Convention 16 people from Kazakhstan, Croatia, Turkey, Ukraine, Macedonia, Hungary, Yugoslavia, Russia, Azerbaijan, Armenia, Georgia, Bulgaria, Moldova, Slovenia, Latvia, Lithuania, Estonia assisted Programme expanded to assist Chapters on 2 levels for the 7 th ECE in Helsinki: Special bursary offered to one representative of 22 Central & Eastern European Chapters (based on GNP figures of the World Bank) – comprising registration, accommodation & travel support One other registered delegate was offered accommodation support for 1 night in order to facilitate attendance at the Chapter Convention

15. Milda Endziniene (Lithuania) Alla Guekht, EAC Chair,(Russia) Cigdem Ozkara, CEA Secretary, (Turkey) Bettina Schmitz (Germany) Michel Baulac, CEA Chair, (France) Meir Bialer, CEA Treasurer, (Israel) Peter Halasz (Hungary) Svein Johannessen, EAC secretary, (Norway) Frederico Vigevano (Italy) Working Groups Education: M Endziniene, M Bialer, B Schmitz, A Guekht, P Halasz, P Wolf Rules: F Vigevano, M Bialer, S Johannessen Relationships with European Organisations, EMEA,..: M Baulac, M Bialer, A Guekht Cooperation / Regional initiatives: A Guekht, S Johannessen, M Endziniene, M Bialer Scientific collaboration / Research: P Halasz, C Ozkara, F Vigevano Communication, Global Campaign: C Ozkara, S Johannessen Peter Wolf EC Members Commission on European Affairs

16. Chapters Sub regional organisation? EAC Proposals Evaluations of needs Motivation of Chapters CEA BUDGET EducationQuality care Regional Inter reg. initiatives CongressScientific cooperation Research Communication Liaison Written rules, statutes Evaluation (Bursaries, fellowships) Centralized Scientific cooperation Education (liaison ILAE commission) Edu courses EMEA / CEA Regional Inter reg.initiatives …….. Conventions Surveys Others… Newsletter BUDGET IOC / SAC