1. Profile of Caregivers AUCD Conference: November 17-20, 2013

2. WHAT IS NATIONAL CORE INDICATORS (NCI)? Multi-state collaboration of state DD agencies Measures performance of public systems for people with intellectual and developmental disabilities Assesses performance in several areas, including: employment, community inclusion, choice, rights, and health and safety Launched in 1997 in 13 participating states Supported by participating states NASDDDS – HSRI Collaboration National Core Indicators (NCI)

3. WHAT IS NATIONAL CORE INDICATORS (NCI)? Currently 39 states, the District of Columbia and 25 sub-state regions (including all CA Regional Centers) National Core Indicators (NCI)

4. WHAT IS NCI? Adult Consumer Survey Family Survey  Adult Family Survey (person lives at home; 18 and older)  Family Guardian Survey (person lives out-of-home; 18 and older)  Children Family Survey (child lives at home; under 18 years old) Provider Survey  Staff Stability System Data  Mortality  Incidents National Core Indicators (NCI)

5. WHAT IS NCI? Adult Family Survey Mailed survey sent by participating states to a sample of families with an adult (18+) individual receiving services living in the family home. 2011-12  5,567 respondents from 14 states National Core Indicators (NCI)

6. WHAT IS NCI? Children Family Survey Mailed survey sent by participating states to a sample of families with an child (<=age 22)receiving services living in the family home. 2011-12  1,481 respondents from 4 states and 1 sub-state entity. National Core Indicators (NCI)

7. Findings

8. Demographics 8 NCI PowerPoint Template WIP

9. Sample Pie Chart NCI PowerPoint Template WIP 9

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