1. Mary Frances Oneha, APRN, PhD August 22, 2013 Tools for Building Infrastructure at Health Centers for Research

2. Why Build Infrastructure? It’s all about the data Improving the health of communities is critical

3. The Investment He Alo a He Alo (Face to Face) Burgess P. (1993) He Alo a He Alo. In He Alo a He Alo Face to Face, Hawaiian Voices on Sovereignty. The American Friends Service Committee

4. Stages of Research Development Collaborating with external entities to recruit research participants Establishing formal partnerships with other organizations and institutions to conduct research Creating a research department to generate own research proposals

5. Shared Commitment Believe Behave Become Belong

6. Building Blocks for a Research Infrastructure Selecting and Establishing Partnerships to gain: A different perspective Expertise in a particular area Access to resources Common vision to facilitating a healthy and sustainable future for communities –A MOU or MOA helps to formalize the relationship Policies and Procedures to Conducting Research Overall policy to conducting research at your CHC Detailed operating procedures

7. Financial Resources Equitable partnerships Human Resources Investment of staff time (new or re-allocated) Research Coordinator (administrative functions) Hard Infrastructure Space Equipment; Secure data storage Software; Library databases; etc. Building Blocks for a Research Infrastructure

8. Challenges and Solutions To Building a Research Infrastructure Infrastructure Human Resources Participant Recruitment Staying Committed

9. Infrastructure ChallengeSolution Competing space needsNot just physical space, but consider secure data storage needs when initiating proposal. Lack of adequate communication tools Technological resources need to be anticipated, budgeted, and used. Lack of analytical softwareAcademic PI purchased quantitative software for the CHC Transition from paper to EMRAllow time if research is in the middle of transition or wait until transition is completed.

10. Human Resources ChallengeSolution Lack of dedicated finance resourcesEnsure timely and dedicated finance resources for processing invoices, incentives, unanticipated adjustments to staff time, etc. High staff turnoverDeveloped “mobile” research orientation and project training program Staff overloadThorough assessment of workload, training, and skill if using existing staff vs. hiring new or temporary staff.

11. Participant Recruitment ChallengeSolution Sustaining engagement over multiple data collection points More frequent contact leading up to data collection point. Determining appropriate over- sampling numbers Understand the social context of the population (mobile population w/ frequent address changes)

12. Staying Committed ChallengeSolution Dissemination and translationState expectation when proposal is presented to CHC. “Shovel-ready” projectsClearly state need to partner in development of idea – have the resources available to do this. Cultural considerations and integration Interpretation & translation is not enough; offer cultural consultation Infrastructure to support data requests Develop data request form that provides the limits to requesting data.

13. References Oneha MF, Dodgson JE. Lessons learned: Refining the research infrastructure at community health centers. Progress in Community Health Partnerships Research Education and Action. Accepted for publication January 6, 2013. Oneha MF, Proser M, Chang Weir R. Community health centers: Why engage in research and how to get started. 2012. NACHC. Shoultz J, Oneha MF, Magnussen L, Hla MM, Brees- Saunders Z, Dela Cruz M, & Douglas M. Finding solutions to challenges faced in community-based participatory research between academic and community organizations. Journal of Interprofessional Care. 2006; 20(2): 133-144. Oneha MF & Beckham S. Re-examining community based research protocols. Pacific Public Health 2. Pacific Health Dialog: Journal of Community Health and Clinical Medicine for the Pacific, 2004; 11(1): 102-106.

14. Mahalo National Institute of Nursing Research (Grant #7R21 NR 010218) Community Health Applied Research Network (CHARN) (Grant #UB2HA20232) DHHS HRSA HIV/AIDS Bureau.