1. The Nutritional Management of Children with SMA: A Toolkit Nora McCormick RD, CD PPC Nutrition Trainee June 16 th, 2015

2. Background  Initial experiences in Neuromuscular Clinic  Lack of significant previous exposure to Spinal Muscular Atrophy population and commonly encountered nutritional issues  Recognizing a need for a basic but comprehensive guide to nutritional management of children with SMA  Thinking about other clinicians, especially RDs, approaching this population with limited experience

3. Objectives  To synthesize and organize existing resources and research regarding the nutritional considerations of children with SMA, while furthering my own knowledge on the topic  To use the above strategy to create a product that can be utilized to enhance the care of children with special health care needs

4. Scope  Audience: Healthcare professionals  Geared towards registered dietitians but can be used by other disciplines as well  Appropriate for clinicians with limited experience working with children with SMA  Accessibility  Published online as web book on issuu.com: http://issuu.com/nutritionaltoolkitforsma/docs/ppc_toolkit

5. Process  Identify need  Conduct literature and resource review  Synthesize and summarize information  Determine appropriate content and depth of information  Feedback  Revision

6. Future Directions  Further input and revision  Experienced dietitians and clinicians from other institutions  Areas for potential improvement:  Resources  Design and layout  Goal: Resource can be accessed from a link on Cure SMA website