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Published byFlorence Sullivan Modified over 9 years ago
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What We Can Learn From
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What is PatientsLikeMe.com? A networking site in which patients can interact and share information with other patients who are coping with the same disease
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Includes more than 1,200 different conditions Over 200,000 Users Collects info. on treatment history, side effects, hospitalizations, symptoms, disease-specific functional scores, weight, mood, quality of life, etc… Mentioned in more than 1,000 publications So how do they stay organized??
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Colors make for easy comparison Most common symp- toms I am a patient or researcher who is really interested in the anxiety that Crohn’s patients experience
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A Study on Anxiety Most Popular Drug Treatment -Different Design -Same Point
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But is Clonazepam right for me? the who the what the how the why Nothing like shopping with all the answers!!!
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And The Personal read comments written by those that have already gone through the experience send other patients a private message and begin a discussion about the issues that are bothering you gain the sense that you are not alone
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Relevant To Us: The Doctor Visit Sheet -A noteworthy space saving technique that PatientsLikeMe uses is color coded line graphs. A PDF sheet for a patient to share with their doctor covering measurements of QOL, history of symptoms as well as the different labs and tests that a patient has had
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