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What We Can Learn From. What is PatientsLikeMe.com? A networking site in which patients can interact and share information with other patients who are.

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Presentation on theme: "What We Can Learn From. What is PatientsLikeMe.com? A networking site in which patients can interact and share information with other patients who are."— Presentation transcript:

1 What We Can Learn From

2 What is PatientsLikeMe.com? A networking site in which patients can interact and share information with other patients who are coping with the same disease

3 Includes more than 1,200 different conditions Over 200,000 Users Collects info. on treatment history, side effects, hospitalizations, symptoms, disease-specific functional scores, weight, mood, quality of life, etc… Mentioned in more than 1,000 publications So how do they stay organized??

4 Colors make for easy comparison Most common symp- toms I am a patient or researcher who is really interested in the anxiety that Crohn’s patients experience

5 A Study on Anxiety Most Popular Drug Treatment -Different Design -Same Point

6 But is Clonazepam right for me? the who the what the how the why Nothing like shopping with all the answers!!!

7 And The Personal read comments written by those that have already gone through the experience send other patients a private message and begin a discussion about the issues that are bothering you gain the sense that you are not alone

8 Relevant To Us: The Doctor Visit Sheet -A noteworthy space saving technique that PatientsLikeMe uses is color coded line graphs. A PDF sheet for a patient to share with their doctor covering measurements of QOL, history of symptoms as well as the different labs and tests that a patient has had

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