1. What to Expect During Your Support Needs Interview Orientation Session for Individuals with Disabilities and Families

2. 22 We are employees of the Oregon Council on Developmental Disabilities We want to help you prepare for your support needs assessment interview. Please ask questions any time! Welcome!

3. 33 People with developmental disabilities and their families have advocated for more choice, control and self-determination over their services.

4. 44 Oregon is making changes so the amount of support and funding people receive is Sensible Fair Person Centered Portable – that means your budget moves if you move

5. 55 What Will We Learn Today? What a support needs assessment is Why Oregon is doing assessments Who created the assessment What the assessment measures What the assessment interview will be like How Oregon will use the information to identify: your level of support needs and your Individual Budget Allocation (IBA)

6. 66 Knowledge is power. Remember:

7. 77 Now let’s get started!

8. 88 OK…So what is an “assessment”? An assessment measures a person’s support needs. This is done during an interview.

9. 99 What is an interview? An interview is a meeting where people are asked lots of questions.

10. 10 What do you need? The assessment interview measures your support needs… by asking you and other people you know some questions.

11. 11 The list of questions is called the SIS ® Supports Intensity Scale… or SIS

12. 12 The group that wrote the interview questions is AAIDD : A merican A ssociation on I ntellectual and D evelopmental D isabilities

13. 13 AAIDD is the largest association in the world for people with developmental disabilities.

14. 14 Are other states using the SIS to measure support needs? YES! Lots of other states are using this list of questions.

15. 15 What Does Supports Mean? Supports Intensity Scale SIS ®

16. 16 “ Supports” are the things you need to do something successfully.

17. 17 What supports might Jim or Al need? Can you give us some examples? JIMAL

18. 18 Here are some more examples: Al may need support with personal care like dressing, bathing and brushing teeth. Jim may need supports from a job coach and personal assistance at work. AL JIM

19. 19 What Does Intensity Mean? SIS ® Supports Intensity Scale

20. 20 “Intensity” means how much and how often. How much support do I need? How often do I need support?

21. 21 What Kind of Questions Will I Be Asked?

22. 22 The assessment measures your support needs to find out: what type of support you need, how often you need it, and how much you need.

23. 23 You will be asked about your support needs in areas such as: Home Life Community Life Lifelong Learning Work Life Social Life Health & Safety Money Matters Self Advocacy

24. For example, you will be asked about Socializing in the home: How often do you socialize? Do you need support to socialize? If so, what type of support do you need? 24

25. You will be asked about Doing volunteer work: How often do you do volunteer work? Do you need support when you volunteer? What type of support would you need? 25

26. One more example – you will be asked questions about Taking medication: How often do you need to take medication each day? How much support do you need to take your medication? How long does it take someone to help you each time you take your medication? 26

27. 27 Why does the state want to do assessments? Because Oregon wants a fair way to measure everyone’s support needs.

28. 28 By asking everyone the same questions, everyone is treated fairly. Wherever you live in Oregon, you will get the same questions.

29. 29 Who will get an assessment interview?

30. 30 Over the next 5 years… Adults living in or moving into group homes or Supported Living programs… … will get an assessment.

31. 31 Do I have to have an assessment? YES! If you get Comprehensive Services through the DD system, you MUST have an assessment!

32. 32 How often will I have an interview? When BIG changes happen in your life OR every 5 years.

33. 33 What if my needs really change? Tell your case manager. You may need a new assessment interview.

34. 34 Someone will call to schedule your interview. During that call, it’s important to say… How you want to participate How you want to communicate Topics that make you uncomfortable Accommodations you will need How will I know the date for my interview?

35. 35 What will I do during the interview? Answer all the questions. Fill out a survey about what you liked or didn’t like about the interview. This is what I need. You You and your team will:

36. 36 During the interview… all the participants should speak up and all the questions must be answered…even if they don’t seem to apply to you now or in the future.

37. 37 During your interview, you will be asked things like… “What would happen if you decided to learn to cook?”

38. 38 Think about cooking in your kitchen. 1. Will the assessment measure how often you would need support to cook a meal? 2.Will the assessment measure how big your kitchen is? Does it measure #1 or #2?

39. 39 It measures how often you would need support to cook a meal in your kitchen.

40. 40 Let’s think about having a job. 1. Will the assessment measure what jobs you might do? 2. Will the assessment measure how much support you need to do your job? Does it measure #1 or #2?

41. 41 2. The assessment measures how much support you would need to do your job.

42. 42 Who will be at my interview? The interviewer You or someone you choose to speak for you And usually about 5 other people who can help answer questions about you

43. 43 These should be be people who know you well, such as: 1 – 2 staff from your home 1 – 2 staff from your work or day program a legal guardian, family member or advocate your case manager or service coordinator I can answer questions, too.

44. 44 You can decide not to be interviewed, but someone you choose who knows you well must answer the questions for you. My friend asked me to answer for her. What if I don’t want to be interviewed?

45. 45 Think about who you would like to have answer questions with you or for you. (These are just examples.) Mom? Friend? Advocate? Brother?

46. 46 The person you choose must know you for at least 3 months. She or he must know you well and know what you need. I’m glad you’re are.

47. 47 Together, you all meet with the interviewer. This will take about three hours.

48. 48 Who is the interviewer? A person who is trained and experienced to do interviews will ask you questions. Training Notebook Interviewer

49. 49 What will the interviewer do? Explain the interview process. Ask you the interview questions. Write down your answers on a computer. What do you need? Interviewer

50. 50 The interviewer will ask about going to the bathroom, your friendships, and your relationships.

51. 51 What if I feel uncomfortable talking about personal things? Tell the interviewer!

52. 52 Now let’s meet a real person and see how this works!!

53. 53 Meet Carolyn. Carolyn is a person with a disability who needs help during meals.

54. 54 One thing the interviewer will want to know about Carolyn is: How often do you need help during meals each day?

55. 55 Carolyn eats 4 meals each day and needs help every time she eats.

56. 56 The interviewer will ask Carolyn: How much support time do you need when you eat?

57. 57 Carolyn spends about 30 minutes eating each meal.

58. 58 4 half-hour meals = 2 hours each day.

59. 59 What else will the interviewer ask Carolyn? What type of support do you need? The interviewer will ask:

60. 60 During meals, Carolyn needs someone to cut her food and stay close by in case she chokes.

61. 61 So the interviewer learns that Carolyn needs:  someone close by  for two hours  each day to assist her with meals.

62. 62 Great. Everyone think about doing your laundry. Ask yourself: What type of support do you need? How often do you need support? How much support do you need? OK…now I want to try.

63. 63 Laundry Worksheet What type of support do I need?  Loading  Folding  Ironing  Other _______ How often do I need support?  Weekly  Twice a week  Other _________ How much support do I need?  One hour  Half hour  Other ____________

64. 64 What answers do you have about doing your laundry?

65. 65 So…what does an assessment interview look like?

66. 66 This 8 minute video* should give you a pretty good idea. * Produced by Washington Division of Developmental Disabilities

68. 68 The interview sounds hard! Remember, it’s not a test. There are no right or wrong answers.

69. 69 BUT you and your team MUST answer ALL the questions, even if it feels hard to admit what you need.

70. 70 Oh…so answering all the questions means getting the right supports? Yes!

71. 71 SO…BE HONEST! The only way to get the services I need is to be honest about what I need.

72. 72 Now here’s a really important point!!!

73. 73 What is learned about your support needs will help set a budget for your services.

74. 74 This budget will be called your Individual Budget Amount…or IBA

75. 75 Is this different from how my services are funded now?  Now your group home or vocational provider gets a budget.  In the future, you will have a budget that moves if you move. Yes!

76. 76 So let’s review! For every part of your daily life… what does the interviewer want to know?

77. 77 The interviewer wants to know about your support needs: What Type? How Often? How Much?

78. 78 What if I have a concern or complaint about the interview process? Write your concerns on the evaluation form. Contact your case manager.

79. 79 Yes! You will get the results in the mail later.. Will I get a copy of my interview results?

80. 80 You can use it at your next annual planning meeting. You could share what you learned about: Your goals Things you need support to do How you like to be supported People who could provide support How can I use the information from my interview?

81. 81 Now you know what to expect when you have your interview! Congratulations!

82. 82 Where Can I Learn More? For more information, visit: www.ocdd.org/ SISorientation.htm

83. Thank you! 540 24 th Place NE Salem, Oregon 97301 503-945-9941 800-292-4154 ocdd@ocdd.org www.ocdd.org

84. 84 This presentation was: Originally designed by self advocates at the Pennsylvania Training Partnership for People with Disabilities and their Families at Temple University Adapted by the Oregon Council on Developmental Disabilities Approved by the Oregon Department of Human Services, Seniors and People with Disabilities Division