1. 1 CDC Southeast American Indian/Alaska Native Regional Cancer Conference “Building Partnerships for Cancer Control “ July 25-27, 2012 Nashville, TN Presenters: Sonya Younger and Vonda Evans

2.  From the coast to the mountains, South Carolina State Parks protect some of the most important and interesting Native American sites in the state.  Almost all State Parks contain remnants of the lives and culture of Native Americans. 2

3.  Walk the Spanish Mount Trail at Edisto Beach State Park that leads to the Spanish Mount Shell Midden Site. The site dates to approximately 3,000 to 4,000 years ago and features a 12-foot high circle of shells that may have been a Native American ceremonial site or a midden (trash heap). 3

4.  Oconee Station State Historic Site in the Blue Ridge foothills explores what life was like for the settlers and Indians on the American frontier.  The park is the site of the annual Native American Day featuring demonstrations such as pottery making, bow making and flint knapping that help visitors learn about the culture of Native Americans before and after European colonization. 4

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6.  Once had 29 distinct tribes (1763)  Currently have 7 (2012):  Catawba  Pee Dee  Chicora  Edisto  Santee  Chicora-Waccamaw  Cherokee 6

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8. 8 Source: SCIWay

9. Source: 2010 Census Results 9

10. 10 Source: SCCCR

11. 11 1. Invasive cases only except for bladder, which includes in situ cancers Source: SCCCR

12. 12 Source: SCCCR

13. 13 1. Incidence data include invasive cases only, except for bladder, which includes in situ cases Source: SCCCR

14.  Identification of individual AIANs  Collecting race for this population is directly related to two things: ▪ 1) availability of the recorded race in the patient medical record/pathology reports, and ▪ 2) accuracy of the recorded race.  The SCCCR collects data from hospitals, path labs, freestanding treatment centers and MD offices (urology, oncology, and dermatology). Race is absent from most pathology reports as this is not reported to the pathologist from the surgeon. So, when the path report is the primary source document identifying the new cancer case to the SCCCR, they follow back to the diagnosing physicians to obtain race from physician source records.  Accuracy of race is more difficult to assess through data quality control 14

15.  Additional steps taken to identify AIANs in SC Cancer Registry  Indian Health Service Linkage ▪ Part of the SCCCR’s data submission preparation and process annually to the North American Association of Central Cancer Registries (NAACCR) ▪ SCCCR links its entire database to the Indian Health Service (IHS). ▪ The detailed breakdown of the link results are returned and a variable is kept in the ‘research’ data file showing the link result for individual patients. 15

16.  Provides eligible South Carolina women with free breast and cervical cancer screenings  Has screened 92,568 women since its beginning in 1991  261 (0.28%) of these women are Native Americans  109 (42%) of the Native Americans screened came back in subsequent years for rescreening 16

17. 17

18.  Seek to identify Tribal Leaders (Chiefs)  Seek to listen to leaders and determine best ways to stress importance of cancer screening  Seek to access available tribal information  Best approaches needed  Ways to keep engaged 18

19.  Seek State Cancer Plan representation and implementation  State Coalition (SCCA) and ACOS partnership  Request review/revision of medical reporting methods to more accurately capture population identification and data 19

20. CATAWBA INDIAN NATION Chief: Bill Harris Phone: 803-366-4792 Email: bill.harris@catawbaindian.netbill.harris@catawbaindian.net PEE DEE INDIAN TRIBE OF SC Chief: James Caulder Email: redfeatherruns@msn.com Telephone: 843-862-3566redfeatherruns@msn.com 20 CHICORA INDIAN TRIBE OF SC Chief Timothy Creel Phone: 843-397-6557 EDISTO INDIAN ORGANIZATION Chief Anthony Davidson Phone: 843-871-2126

21. SANTEE INDIAN NATION OF SC Chief William Koon Phone: 864-541-8759 SANTEE INDIAN ORGANIZATION Chief Randy Crummie Phone: 803-308-7991 Email: rcrummie@mbkahn.comrcrummie@mbkahn.com 21 THE WACCAMAW INDIAN PEOPLE OF AYNOR, SC Tribal Chief Harold D. Hatcher Phone: 843-358-6877 Email: webmaer@waccamawindians.us webmaer@waccamawindians.us PIEDMONT AMERICAN INDIAN ASSOCIATION - CHEROKEE Chief Gene Norris Phone: 864-683-1421 Email: gvnorris@charter.netgvnorris@charter.net

22. Sonya Younger, MBA, Manager Comprehensive Cancer Control Phone: (803) 545-4114 Email: youngesm@dhec.sc.govyoungesm@dhec.sc.gov Website: www.scdhec.gov/cancerwww.scdhec.gov/cancer 22 S.C. DEPT. OF HEALTH AND ENVIRONMENTAL CONTROL (SCDHEC) AMERICAN CANCER SOCIETY Vonda Evans, MPH, CHES Recruitment Senior Manager (843) 744-1922 Email: Vonda.Evans@cancer.orgVonda.Evans@cancer.org Website: www.cancer.ogwww.cancer.og

23. SC CENTRAL CANCER REGISTRY Susan Bolick, MSPH, CTR, Director Email: bolicks@dhec.sc.govbolicks@dhec.sc.gov Phone: (803) 896-2100 Website: www.scdhec.govwww.scdhec.gov SC CANCER ALLIANCE Steve Lovelace, Executive Director Email: steve.lovelace@sccanceralliance.org steve.lovelace@sccanceralliance.org Phone: (866) 745-5680 (Toll Free) Website: www.sccanceralliance.orgwww.sccanceralliance.org 23 SCDHEC NCCCP MANAGEMENT Virginie Daguise, PhD, Director Division of Cancer Prevention and Control Phone: (803) 545-4942 Email: dagusivg@dhec.sc.govdagusivg@dhec.sc.gov Website: www.scdhec.gov/cancerwww.scdhec.gov/cancer Dianna Lydiard, PhD, Director NBCCEDP Phone: (803) 545-4116 Email: lydiard@dhec.sc.govlydiard@dhec.sc.gov Website: www.scdhec.gov/cancerwww.scdhec.gov/cancer

24.  South Carolina Indian Affairs Commission www.southcarolinaindianaffairs.com  Native American in South Carolina www.sciway.net/hist/indians  South Carolina Native American Affairs www.state.sc.us/cma/nativeai.html  South Carolina Native American Culture http://studysc.org/elementary/native-american-culture 24