1. Organ Donation and Transplantation in Paediatrics

2. Deceased donors, transplants and active transplant list in the UK Paediatrics only (<18 yrs)

3. Transplant waiting lists

4. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015 KIDNEY

5. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015 HEART

6. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015 LUNG

7. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015 LIVER

8. Paediatric patients (<18 yrs) on active transplant list at 9 July 2015 SMALL BOWEL

9. Possible and actual organ donors

10. Deceased paediatric donors (<18 yrs), by donor type

11. Deceased paediatric donors (<2 yrs), by donor type 5 years: 1 April 2010 – 31 March 2015 Number

12. Number of paediatrics (<2 yrs) at each stage of DBD donation process Number 5 years: 1 April 2010 – 31 March 2015

13. Number of paediatrics (<2 yrs) at each stage of DBD donation process, by year

14. Number of paediatrics (<2 yrs) at each stage of DBD donation process, by age group 5 years: 1 April 2010 – 31 March 2015

15. Number of paediatrics (<2 yrs) at each stage of DCD donation process 5 years: 1 April 2010 – 31 March 2015

16. Number of paediatrics (<2 yrs) at each stage of DCD donation process, by year

17. Number of paediatrics (<2 yrs) at each stage of DCD donation process, by age group 5 years: 1 April 2010 – 31 March 2015

18. Reasons for lack of family approach and for family refusal

19. Reasons for families of eligible DBD donors not being approached Age group < 2 months2-6 months6-12 months12-24 monthsTotal Coroner/Procurator Fiscal refused permission 077519 Other 01135 Family considered too upset to approach 01012 Not identified as a potential donor / organ donation not considered 01001 Other medical reason 00011 Patient's general medical condition 00011 Total 01081129 Coroner refusals due to non-accidental deaths and police investigations, and social services involvement. Text stated under ‘other’ text for 5 cases includes information regarding police investigations and legal objections 5 years: 1 April 2010 – 31 March 2015

20. Age group <1 month1-2 months2-6 months12-24 months6-12 monthsTotal Not identified as a potential donor / organ donation not considered 151916 1884 Patient outside age criteria 2826211177 Other 181314131169 Patient's general medical condition 119 7442 Coroner/Procurator Fiscal refused permission 1453316 Other medical reason 2352214 Family considered too upset to approach 111216 Family stated that they would not consent/authorise before they were formally approached 000314 Resource failure 001001 Total 7675744741313 Reasons for families of eligible DCD donors not being approached Coroner refusals due to need to examine all organs for PM, social services/police involvement, some CODs not explained Text stated under ‘other’ text includes information regarding donors being too young for DCD donation (local criteria quoted as 6 months up), too small, police investigations, and no suitable recipients 5 years: 1 April 2010 – 31 March 2015

21. Age group < 2 months2-6 months6-12 months12-24 months Total Strong refusal - probing not appropriate 02226 Family felt the body needs to be buried whole (unrelated to religious or cultural reasons) 01135 Family did not want surgery to the body 00213 Other 00213 Family felt it was against their religious/cultural beliefs 00202 Family wanted to stay with the patient after death 00022 Family felt the length of time for donation process was too long 00101 Total 0310922 Reasons for family consent/authorisation not given for DBD donation Text stated under ‘other’ text for 3 cases includes no reason given by Consultant following their approach, and emotional reasons from family members 5 years: 1 April 2010 – 31 March 2015

22. Reasons for family consent/authorisation not given for DCD donation Age group <1 month1-2 months 2-6 months 12-24 months 6-12 months Total Family felt the length of time for donation process was too long 5142921 Strong refusal - probing not appropriate 2253820 Other 3131614 Family did not want surgery to the body 3120410 Family wanted to stay with the patient after death 1114310 Family felt the patient had suffered enough 010146 Family felt it was against their religious/cultural beliefs 100113 Family felt the body needs to be buried whole (unrelated to religious or cultural reasons) 011013 Family were divided over the decision 010023 Family concerned that organs may not be transplanted 001001 Family did not believe in donation 000011 Total 15917123992 Text stated under ‘other’ text for 14 cases includes emotional reasons from family, child’s size, and contesting of medical decision RE WLST leading to a court case 5 years: 1 April 2010 – 31 March 2015