Download presentation
Presentation is loading. Please wait.
Published byElisabeth Horn Modified over 9 years ago
1
1 Launching a European Platform Towards a common European policy Jan Busschbach
2
2 Scarcity of donor organs Scarcity of donor organs Ever since transplantation started Although it has been contested by medical progress Scarcity will increase Has not been solved by medical progress as medical progress will continue Scarcity In fact distribution problem Scarcity seems function of health policy We should address ‘Ethical, Legal and Psychological Aspects’
3
3 No fluid progress In health policy progress seems less clear than the medical advancements Examples Failure to increase post mortem donation Failure to control commercial donation No real progress over 20 years some even suggest decline
4
4 Obstructive factors One can think of several obstructive factors In the progress of ‘Ethical, Legal and Psychological Aspects’ Embedded in local…. National values Health care systems National political systems Difficulty implementing international research
5
5 Chances Local differences, increases variances We can observe real life experiments Often on a nation size level Quality increases when comparing the differences General rule; bench marking So… facilitate communication!
6
6 Communication “Communication is the problem to the answer…” 10 cc, The thinks we do for love, 1976 As there is no specific communication platform Journal Society, foundation At least in Europe Conference At least not a regular one 10 cc
7
7 Ad hoc initiatives in the past Last initiative by Land, Gutman,Sells & Daar International Congress on Ethics of Organ Transplantation December 2002 Munich Successful Bring together scientist and policy Report in books Nevertheless ad hoc
8
8 Continuity: platform There seems to be a need… ..but can we establish continuity? Try to replicate last initiative in Munich Initiative of Erasmus MC, Dutch Transplantation Foundation, and Dutch Health Council Add continuity: Establish a European Platform
9
9 The platform: ELPAT What; European platform Ethical, Legal and Psychological Aspects of Transplantation How: Facilitate and structure communication about European research initiatives in this field of science Quality improvement Wherefore: To make progression in resolving the scarcity in donor organs, within well establish legal, psychological and ethical boundaries
10
10 5 objectives of ELPAT 1. Organize a conference to mark the start of the platform 2. Establish a secretariat and initial resources to initiate the Platform 3. Bring continuity and structure in the dialogue (communication) 4. Be helpful in solving differences between European countries, and in formulating guidelines 5. Inform the general public
11
11 International conference Objective 1 Organize a high quality international conference to mark the start of the platform Facilitate high quality scientific communication Help to formulate priorities in research and policy for the Platform A start is a necessary but not sufficient condition of continuity…
12
12 Secretariat and initial resources Objective 2: Establish a secretariat and initial resources to initiate the Platform The ELPAT Platform has successfully applied for a grant of the European Union For the conference For the platform Sufficient for 0.2 FTE secretariat and 0.5 FTE coordinator for the first year, that is until April 2008
13
13 Continuity and structure Objective 3: Bring continuity and structure in the dialogue Research agenda A book reflecting the main discussion themes of the conference A willing publisher and sufficient resources are already arranged www.elpat.eu www.elpat.eu Will be continued Newsletter Twice a year
14
14 Continuity and structure: ESOT Cooperated with ESOT Look for possibility to professionalise Meetings Small task force meetings for specific priority topics Obviously, topic identified here during the meeting Organize small general meetings Preferably satellite meetings synchronized with ESOT meetings Organize large ‘stand alone’ conference every 4 year
15
15 European guidelines Objective 4 Be helpful in formulating European guidelines on ethical, legal and psychological aspects Towards a common European policy Focus on the priorities as put forward during the founding conference Make draft recommendations and guidelines Organize task force meetings to establish the guidelines The Platform will try to be a link with European organizations e.g. EU, Council of Europe, ESOT
16
16 Inform the general public Objective 5 Informing the general public about new developments in the field of ethical, legal and psychological aspects of organ transplantation Health policy needs public communication Much of our work is determined by media Making pages at website for lay people Provide state-of-the-art information An internet discussion platform
17
17 5 objectives of ELPAT Organize a high quality international conference to start the platform Establish a secretariat and initial resources Bring continuity in the dialogue ESOT - Be helpful in formulating European guidelines Inform the general public Press have already been active
18
18 Further items
19
19 Leaving Rotterdam Do not forget your possible book contributions…. Have a last lunch with us… We wise you a comfortable and safe journey home
Similar presentations
© 2025 SlidePlayer.com. Inc.
All rights reserved.