1. Moving forward in partnership: Developing a roadmap to promulgate and implement the European Cancer Patient’s Bill of Rights Mark Lawler ECC Project Lead and Queen’s University Belfast Francesco de Lorenzo President European Cancer Patient Coalition

2. The Greatest Wealth is Health Publius Vergilius Maro (Better known as the Roman poet Virgil)

3. Fast Forward ~2000 Years Health care Inequalities Escalating Healthcare Costs

4. The Economic Burden of Cancer Global economic burden of cancer, due to premature death and disability, was $1.16 Trillion in 2010 1 (over 2% of the worldwide GDP) Europe: €124 billion (2009) 2 – Direct Healthcare Costs (39%) – Loss of Productive Life Years (61%) 1 American Cancer Society (2010) 2 Luengo Fernandez R et al Lancet Oncology (2013)

5. The cost/value rubicon How much is a cancer patient’s life worth to society? And what are we willing to pay?

6. Are we in Crisis? Urgent need to address the cost/value rubicon in cancer care and develop optimal but viable solutions for patients and society

7. Wealth is Health 2008 Tallinn Charter Pledge to invest in the improvement in European Health Care Systems Now a distant memory BUT!

8. The Greatest Wealth is Health Justification should not be forgotten Appropriate investment brings not only better health but – Driver of economic growth – Increased innovation – Improved productivity – Reduced pressure on future health and social welfare systems

9. Rekindling the Wealth is Health Agenda Earlier access to high quality diagnosis underpins more successful therapeutic intervention Optimal cancer care contributes to the health and economic benefit of European citizens and societies

10. European Cancer Patient’s Bill of Rights: Where do we go from here? Partnership Publish and Launch Bill of Rights Promulgate Implement

11. European Cancer Patient’s Bill of Rights: Where do we go from here? Partnership Publish and Launch Bill of Rights Promulgate Implement

12. European Cancer Patient’s Bill of Rights: Where do we go from here? Partnership Publish and Launch Bill of Rights Promulgate and Implement

13. European Cancer Patient’s Bill of Rights: Where do we go from here? Partnership Publish and Launch Bill of Rights Promulgate and Implement

14. European Cancer Patient’s Bill of Rights: Where do we go from here? Partnership Publish and Launch Bill of Rights Promulgate Implement

15. European Cancer Patient’s Bill of Rights: Where do we go from here? Partnership Publish and Launch Bill of Rights Promulgate Implement

16. European Cancer Patient’s Bill of Rights: Where do we go from here? Partnership Publish and Launch Bill of Rights Promulgate Implement The Challenge!

17. European Cancer Patient’s Bill of Rights: Implementation Partnership for implementation Continued engagement with PAOs/NGOs at European/ National level Continued engagement with Cancer Leaders/Organisations at European/National levels Influencing the decision makers!

18. A CALL TO ACTION A MANDATE FOR IMPROVED CANCER CARE FOR THE EUROPEAN CITIZEN

19. On World Cancer Day We call on MEPs to: Make Cancer part of your Election Mandate

20. On World Cancer Day We call on MEPs to: To make cancer a priority on the political agenda and to address the disparities that cancer patients and families face every single day of their lives throughout Europe (as agreed in the “European Parliament resolution on combating cancer in the enlarged European Union” (B6-0132/2008) of April 4 th 2008).

21. On World Cancer Day We call on MEPs to: Make Cancer part of your Election Mandate Establish an EU Cancer Plan

22. On World Cancer Day We call on MEPs to: To address the unacceptable disparities through the establishment of an EU Cancer Plan which guarantees an improved standard of care for European cancer patients according to Article 20 of the Council Conclusions on reducing the burden of cancer (Luxembourg, 10 June 2008): “which will address all aspects of comprehensive cancer control, including prevention, early detection, diagnosis, treatment, rehabilitation and palliative care through a multidisciplinary approach and consider the appropriate framework for effective cancer control policies and sharing best practices in cancer prevention and care”. (the European Guide for Quality National Cancer Control Programmes recently approved by EPAAC might facilitate the EU institutions actions in this field).

23. On World Cancer Day We call on MEPs to: Uphold Right of European Citizen to improved care Engage proactively with ECC Adopt European Cancer Patient’s Bill of Rights Strengthen a cross party MEPs against Cancer (M.A.C) Alliance Create a European Cancer Survivorship Plan

24. On World Cancer Day We call on MEPs to: Listen and respond to the Voice of European Patients Champion Cancer in the European Parliament through the M.A.C Alliance

25. On World Cancer Day We call on MEPs to: Listen and respond to the Voice of European Patients Champion Cancer in the European Parliament through the M.A.C Alliance

26. On World Cancer Day We therefore call on: Prospective incoming members of the European Parliament to place cancer firmly and transparently within their election mandate and to join the MEPs against Cancer (M.A.C.) Alliance.

27. On World Cancer Day We call on European Commission to: Place cancer high on the political agenda Support research excellence and its translation Present an EU Action Plan on Cancer

28. The Greatest Wealth is Health

29. “The noblest motive is the public good.”

30. Remember In 2012, three European citizens died every minute from this deadly disease By 2035, there will be a cancer death in Europe every 10 seconds Cancer respects no borders We need to act NOW!