1. MINIMAL DATA SET FOR QUITLINES North American Quitline Consortium Annual Meeting May 2005 NORTH AMERICAN QUITLINE CONSORTIUM

2. MDS Working Group Eric Auguston Sharon Campbell Sharon Cummins Donna Czukar Corrine Husten Anne Joseph Ann Malarcher Paul McDonald Deborah Ossip-Klein Joanne Pike Abby Rosenthal Jessie Saul Barbara Schillo Donna Vallone Susan Zbikowski Plus many other volunteers

3. WHY A MINIMAL DATA SET? Quitlines are new … Few answers to operational questions Hard to determine what contributes to success Different definitions of caller, smoker, quitter Different measures of quit rates Different follow-up periods Different numerators and denominators Comparing and learning from other quitlines very difficult

4. What can a Minimal Dataset do? 1. Facilitates performance monitoring and operational management 2. Makes comparisons possible 3. Allows for better understanding of quitlines

5. What Else? Provide stakeholders with a standard approach to reporting quitline performance, Provide researchers with common indicators to conduct descriptive and comparative research.

6. STEPS IN DEVELOPMENT 2001 2003 2003 - 2004 Feb 12, 2005 May 2005 Sept 2005 Need for Common Evaluation Framework – Phoenix Quitline Conf. NAQC establishes MDS Working Group (became the Evaluation and Research Group) Consultation with Quitline Stakeholders Identify Existing Indicators & Measures Finalize and Sign Off Use of MDS in European Quitline Network Study Roll-out and testing by quitlines Implementation across NA

7. Principles 1. Not impose undue burden on quitlines 2. Feasible to collect and report 3. Meaningful, valid and reliable 4. Tied to decision making and performance indicators

8. Four Questions All Quitlines Ask 1. Who uses (and doesn’t use) quitlines? 2. How do we best promote quitlines? 3. What proportion of smokers in the target population does the quitline reach? 4. Are quitlines effective and for whom?

9. Domains included in MDS Awareness of quitline Reach and Utilization Caller characteristics Tobacco Behaviours Satisfaction with service Service Delivery (intervention provided)

10. Components of Minimal Data Set 1. Quitline Survey 2. 15 Intake Questions 3. 11 Follow-up Questions 4. Optional Questions 5. Guidelines for Tracking 6. Technical Documents and Assistance

11. Quitline Survey Standardized description of quitline service model, operational aspects of quitline, staffing, eligibility criteria, interventions, promotion. Allows understanding of differences in service models that may influence quitline performance See: 2004 Survey Resultswww.naquitline.org

12. Intake Questions Reason for Call (quit, stay quit, information) How Caller Heard about Quitline Who Calls (tobacco user, proxy, referral, first time or repeat; caller demographic characteristics) Tobacco behaviors (type, amount of tobacco, level of addiction, intent to quit next 30 days)

13. 7 month Follow-Up Questions Caller satisfaction Tobacco behaviors (type, amount of tobacco, level of addiction). Will be able to calculate if callers switch type of tobacco used between first call and follow-up Quit attempt (for 24 hours) Quit Rates (7 day, 30 day point prevalence, prolonged abstinence) Use of other cessation aides

14. Tracking Data Date and Type of First Call Intervention Provided Vendor / Operator Evaluator

15. Follow-up Period First call Intake +/- Counsel Intervention - Counseling Reactive Proactive -Referral -Self-help - NRT Follow-Up -Reduce -Switch -Quit Attempt -Quit Rate -Satisfaction X X Day One One MonthSix Months............................ Seven Months Quitline collects Evaluator collects

16. Repeat Callers Jan Feb Mar Apr May Jne Jly Aug Spt Oct Nov Dec Jan Feb Mar Apr x1FU x3 x2 x1 Each Caller should be in denominator only once per 12 month period FU

17. Definitions (examples) Counseling: Caller centered, tailored to person, in depth, motivational interaction Information: objective, neutral information about consequences of smoking, cessation methods, referrals. First Call: caller speaks to quitline staff, includes screening or intake interview. Does not include voice message.

18. Challenges Balance service delivery with data collection Comparison of current and historical results with MDS results Benefits Better understanding of quitlines Ability to learn from others

19. Next Steps Presentation to North American Quitlines Implementation team Technical Assistance Timeline for implementation – September 2005 Go !! Report, Review, Adjust (in Dec 2005)

20. Acknowledgements Members of MDS Working Group Health Canada American Legacy Foundation National Cancer Institute

21. Contact Information Members of MDS Working Group c/o Linda Bailey, Executive Director, NAQC Email: lbailey@americanlegacy.org Website. : www.naquitline.org