1. NN/LM PSR Regional Advisory Committee Meeting Alan Carr, Acting Associate Director National Network of Libraries of Medicine Pacific Southwest Region (NN/LM PSR) UCLA Louise M. Darling Biomedical Library March 27, 2013

2. Program Overview NN/LM NN/LM –Mission, Goals and Objectives –Structure –Pacific Southwest Region –2011-16 Proposal NN/LM PSR NN/LM PSR –Network & Outreach Programs –Communication Tools

3. National Network of Libraries of Medicine (NN/LM) Nationwide network of libraries and information centers that have health collections and provide health information services Nationwide network of libraries and information centers that have health collections and provide health information services Funded and administrated by the U.S. National Library of Medicine (NLM) Funded and administrated by the U.S. National Library of Medicine (NLM)

4. NN/LM Regions

5. Mission To advance the progress of medicine and improve the public health To advance the progress of medicine and improve the public health Providing U.S. health professionals with equal access to biomedical information Providing U.S. health professionals with equal access to biomedical information Improving the public’s access to information Improving the public’s access to information

6. Goals To develop collaborations with Network libraries to improve access to and sharing of biomedical information resources throughout the nation; To develop collaborations with Network libraries to improve access to and sharing of biomedical information resources throughout the nation; To promote awareness of and access to biomedical information resources for health professionals and the public; and To promote awareness of and access to biomedical information resources for health professionals and the public; and To develop, promote, and improve access to electronic health information resources by network member libraries, health professionals, and organizations providing health information to the public. To develop, promote, and improve access to electronic health information resources by network member libraries, health professionals, and organizations providing health information to the public.

7. Objectives Developed in response to a Request for Proposals (RFP) - 5-year NLM contract Developed in response to a Request for Proposals (RFP) - 5-year NLM contract 16 Network Program objectives 16 Network Program objectives 7 Outreach Program objectives 7 Outreach Program objectives Regional objectives determine the services that are provided Regional objectives determine the services that are provided The Regional Advisory Committee (RAC) provides input on the objectives The Regional Advisory Committee (RAC) provides input on the objectives

8. Types of Services Provided Training and Assistance Training and Assistance Exhibits and Presentations Exhibits and Presentations Access to Health Information Resources and Services Access to Health Information Resources and Services Educational Brochures Educational Brochures Funding Funding Consulting and Referrals Consulting and Referrals

9. NN/LM Structure 8 Regional Medical Libraries (RMLs) 8 Regional Medical Libraries (RMLs) Over 140 Resource Libraries Over 140 Resource Libraries Nearly 6,000 Network members Nearly 6,000 Network members 3 National Centers 3 National Centers –National Training Center –Outreach Evaluation Resource Center –Web Services Technology Operations Center

10. NN/LM Pacific Southwest Region Extremely diverse culturally, ethnically, racially, and linguistically Extremely diverse culturally, ethnically, racially, and linguistically Population distribution (urban, rural) Population distribution (urban, rural) 14 million speak languages other than English at home 14 million speak languages other than English at home Growing senior population Growing senior population Medically underserved Medically underserved

11. New Objectives for 2011-16 Continue with emergency preparedness Continue with emergency preparedness Continue e-licensing program with SCELC Continue e-licensing program with SCELC Retention of selected print publications Retention of selected print publications Assist librarians in promotion of evidence- based health information Assist librarians in promotion of evidence- based health information Promote the role of libraries in e-science Promote the role of libraries in e-science Promote programs with RECs Promote programs with RECs Promote the role of libraries with CTSAs Promote the role of libraries with CTSAs

12. 2011-16 National Initiatives Promotion of MedlinePlus Connect Promotion of MedlinePlus Connect Outreach to Community Colleges Outreach to Community Colleges Promotion of ClinicalTrials.gov Results Promotion of ClinicalTrials.gov Results K-12 Outreach K-12 Outreach Science Boot Camp Science Boot Camp

13. Regional Advisory Committee (RAC) Provides advice and feedback Provides advice and feedback –Assessing regional needs –Program development, priorities Communicates and promotes programs Communicates and promotes programs Identifies health professionals, others lacking adequate health information access Identifies health professionals, others lacking adequate health information access

14. RAC Representation (16) Health professionals Health professionals Health sciences librarians Health sciences librarians Public and school libraries Public and school libraries Health information consumer groups Health information consumer groups Community colleges Community colleges Community-based organizations Community-based organizations

15. Network Programs in the NN/LM PSR

16. Full and Affiliate Members in the Pacific Southwest Region FullAffiliateTotal Arizona375087 California233195428 Hawaii131023 Nevada141024 Pacific Basin 4812 PSR301273574

17. Network Members in the Pacific Southwest Region AcademicHospitalPublicOther Arizona24391410 California1252153157 Hawaii81014 Nevada9753 Pacific2712 PSR1682785276

18. How are libraries changing? Retirements! Vacancies may not be filled. Retirements! Vacancies may not be filled. New roles for librarians. New roles for librarians. Chains are consolidating libraries/services. Chains are consolidating libraries/services. Some hospital libraries are being eliminated/downsized due to budget cuts. Some hospital libraries are being eliminated/downsized due to budget cuts. Some hospital libraries are being merged with other departments. Some hospital libraries are being merged with other departments.

19. Key Network Programs Membership Membership –Educational materials –Funding for outreach projects DOCLINE & Document Delivery DOCLINE & Document Delivery –Implementing regional document delivery plan –Contributing to DOCLINE development –Providing training and support

20. DOCLINE Trends DOCLINE usage has decreased 46% since 2002; 8% in the last year DOCLINE usage has decreased 46% since 2002; 8% in the last year Loansome Doc usage has decreased 68% since 2002 Loansome Doc usage has decreased 68% since 2002 NLM is investigating the declining trends NLM is investigating the declining trends Currently conducting resource sharing survey with DOCLINE libraries Currently conducting resource sharing survey with DOCLINE libraries

21. Outreach Programs in the NN/LM PSR

22. Outreach Program Areas Health Professionals and Public Health Workers Health Professionals and Public Health Workers Consumers Consumers Exhibits and Presentations Exhibits and Presentations Information Technology and Policy Awareness Information Technology and Policy Awareness Technology Improvement Technology Improvement

23. Outreach to Health Professionals Target health professionals who lack easy access to biomedical information; such as community health and public health workers Target health professionals who lack easy access to biomedical information; such as community health and public health workers Outreach funding awards Outreach funding awards Minority institutions (community colleges) Minority institutions (community colleges) E-science initiatives E-science initiatives

24. Consumer Health Information Services Target public libraries, community-based organizations Target public libraries, community-based organizations Focus on those who serve minorities, senior citizens, other special populations Focus on those who serve minorities, senior citizens, other special populations Collaborate on NN/LM K-12 cross regional initiative Collaborate on NN/LM K-12 cross regional initiative Develop culturally sensitive materials, classes Develop culturally sensitive materials, classes Provide outreach project preparation assistance Provide outreach project preparation assistance

25. Communication Tools PSR-News Announcement List PSR-News Announcement List Midday at the Oasis Webinars Midday at the Oasis Webinars Latitudes and NewsBits Blogs Latitudes and NewsBits Blogs Facebook page Facebook page Twitter Feed Twitter Feed –HootSuite to Manage and Schedule Tweets

26. Blog Usage Statistics ArticlesFebruary 2013 Views New Children’s Electronic Health Record Format Announced! 139 Changes to Northern California Kaiser Permanente Libraries DOCLINE Accounts 137 Update on NIH’s Public Access Policy131 Demographic Report on Asian American, Native Hawaiians and Pacific Islanders in California 129 Call for Proposals: MLGSCA/NCNMLG 2013 Joint Meeting July 24-26 at UCSD 127 Publisher Supplied Author Keywords Now Displayed in PubMed! 118

27. NLM Netvibes

28. Other Tweet Sources

29. Questions & Discussion

30. Your Ideas! How do you use social media to promote your programs and/or services? How do you use social media to promote your programs and/or services? What strategies have worked well? What strategies have worked well?

31. MedlinePlus Connect Initiative Kelli Ham, MLIS Consumer Health and Technology Coordinator NN/LM Pacific Southwest Region

32. What is MedlinePlus Connect? Behind the scenes system that connects information in the electronic health record to information in MedlinePlus Behind the scenes system that connects information in the electronic health record to information in MedlinePlus Works for diagnoses, lab tests and medications Works for diagnoses, lab tests and medications

33. MedlinePlus Connect Task Force Define audience Define audience Learn about the target community’s needs and available resources Learn about the target community’s needs and available resources Articulate outcomes Articulate outcomes Track and evaluate outreach efforts Track and evaluate outreach efforts Identify best practices Identify best practices Share findings Share findings

34. Potential Audiences Medical librarians Medical librarians RECs RECs FQHCs FQHCs HIT personnel HIT personnel –Hospitals and other healthcare organizations –Community college HIT program faculty Vendors (NLM) Vendors (NLM)

35. Potential Barriers Lack of awareness (even at basic MedlinePlus level) Lack of awareness (even at basic MedlinePlus level) Fear that ‘free’ equates to low quality or extra work Fear that ‘free’ equates to low quality or extra work Vendors – no financial incentive Vendors – no financial incentive

36. What have we done so far? Defined audiences Defined audiences Key informant interviews Key informant interviews Convened day-long meeting Convened day-long meeting –Consensus that toolkit would be most helpful –Brainstormed contents of toolkit –Future meetings will continue the work

37. To Learn More…

38. What strategies… would be most effective for MedlinePlus Connect outreach? would be most effective for MedlinePlus Connect outreach?

39. Kay Deeney, MLS, AHIP Educational Services Coordinator NN/LM Pacific Southwest Region Outreach to Community Colleges Task Force

40. Facts about Community Colleges Train everyone from EMTs to Health IT to RNs Train everyone from EMTs to Health IT to RNs Multi-disciplinary library staff! Multi-disciplinary library staff! Library as place Library as place Faculty collaboration Faculty collaboration

41. NLM National Initiative for Community College Outreach Articulate desired outcomes for outreach to community colleges, for example: Articulate desired outcomes for outreach to community colleges, for example: –links to MedlinePlus, PubMed –training activities –partnerships with NN/LM –membership in NN/LM –links to MedlinePlus Connect Learn about the target community’s needs and available resources Learn about the target community’s needs and available resources

42. NLM Initiative, continued Determine how outcomes will be measured, how data will be collected, and a timeline for activities Determine how outcomes will be measured, how data will be collected, and a timeline for activities Identify and document effective practices for providing health information outreach to community college community Identify and document effective practices for providing health information outreach to community college community Communicate findings to the NN/LM community and stakeholders Communicate findings to the NN/LM community and stakeholders

43. What have we done with CCs so far? Phone interviews with community college librarians and faculty Phone interviews with community college librarians and faculty Pilot training Jan, 2012 with Shasta College, Redding, CA Pilot training Jan, 2012 with Shasta College, Redding, CA LibGuide for community college library training, April 2012 LibGuide for community college library training, April 2012 –http://guides.nnlm.gov/content.php?pid=330235 &sid=3297873 http://guides.nnlm.gov/content.php?pid=330235 &sid=3297873http://guides.nnlm.gov/content.php?pid=330235 &sid=3297873 –4 Classes– PubMed, MedlinePlus, Mobile Apps, Special Populations Roundtable discussion at AzLA Roundtable discussion at AzLA

44. What Strategies... can you suggest to increase outreach for NLM resources in community colleges? can you suggest to increase outreach for NLM resources in community colleges?

45. Lori Tagawa Community Outreach Coordinator NN/LM Pacific Southwest Region March 27, 2013 ClinicalTrials.gov Results Task Force Update

46. ClinicalTrials.gov A registry and results database of publicly and privately supported clinical studies of human participants conducted around the world A registry and results database of publicly and privately supported clinical studies of human participants conducted around the world 142,567 studies with locations in all 50 states and in 183 countries 142,567 studies with locations in all 50 states and in 183 countries 95 million page views per month and 60,000 unique visitors daily 95 million page views per month and 60,000 unique visitors daily

47. ClinicalTrials.gov: Contents Find and view clinical studies Find and view clinical studies –Search for open clinical studies –Browse studies by category or location –Search for studies that include results Learn more about clinical research Learn more about clinical research Manage study records Manage study records Use site tools and data Use site tools and data

48. http://clinicaltrials.gov/

49. ClinicalTrials.gov Results Database Launched in September 2008 to implement Section 801 of the Food and Drug Administration Amendments Act of 2007 (FDAAA 801) Launched in September 2008 to implement Section 801 of the Food and Drug Administration Amendments Act of 2007 (FDAAA 801) Results information includes Results information includes –Participant flow –Baseline characteristics –Outcome measures and statistical analyses –Adverse events 8,500 studies with results 8,500 studies with results

50. ClinicalTrials.gov Results Database: Purpose Provide public record of basic study results in a standardized format Provide public record of basic study results in a standardized format Promote fulfilling of ethical responsibility to participants; use of research results to contribute to medical knowledge Promote fulfilling of ethical responsibility to participants; use of research results to contribute to medical knowledge Mitigate "publication" and "outcome reporting" biases Mitigate "publication" and "outcome reporting" biases Facilitate systematic reviews and other analyses of the research literature Facilitate systematic reviews and other analyses of the research literature

51. ClinicalTrials.gov Results Task Force: Charge 1. Identify priority target populations 2. Learn about target populations’ needs and available resources 3. Determine extent of existing promotional efforts 4. Articulate desired outcomes 5. Develop logic model to describe how outcomes will be achieved 6. Determine how outcomes will be measured, how data will be collected, and timeline for activities 7. Make recommendations to NLM about how best to promote on a national level 8. Communicate findings to NN/LM community

52. ClinicalTrials.gov Results Task Force: Audience and Goals Primary: Educate health sciences librarians and researchers as to the availability of the results Primary: Educate health sciences librarians and researchers as to the availability of the results Secondary: Inform health sciences librarians and researchers of the obligation to report Secondary: Inform health sciences librarians and researchers of the obligation to report

53. ClinicalTrials.gov Results Task Force: Outcomes of Training Greater use of database Greater use of database Incorporation of database in other training Incorporation of database in other training Increase of compliance Increase of compliance Increase in results Increase in results

54. ClinicalTrials.gov Results Task Force: Strategies NN/LM NN/LM –Moodle course (3.0 MLA CE, pending) –Short presentations (30-60 minutes) NLM NLM –Educational materials –Results Database Train-The-Trainer Workshop

55. Moodle Course “ClinicalTrials.gov: results reporting, unique evidence, and evolving policy” “ClinicalTrials.gov: results reporting, unique evidence, and evolving policy” –Module 1 - Clinical Trials, Registration and Results Reporting, and Users –Module 2 - Searching and Interpreting –Module 3 - Low Compliance Rate and Outreach 3.0 MLA CE, pending 3.0 MLA CE, pending

56. http://nnlm.gov/moodle/

57. Presentations Abstract: “…Taught by an experienced medical librarian, this presentation will describe ways in which ClinicalTrials.gov can be a resource for researchers and clinicians, as well as provide a brief overview of requirements for registering and reporting results of clinical trials… In addition to submitting their own studies, researchers can find previous unreported study results, investigate research funded by particular sources and find potential collaborators on future projects.”

58. http://prsinfo.clinicaltrials.gov/registering.pdf

59. http://clinicaltrials.gov/ct2/manage- recs/present#ResultsTrainTrainer

60. Discussion What strategies should be utilized to identify and train researchers on ClincialTrials.gov Results? What strategies should be utilized to identify and train researchers on ClincialTrials.gov Results?

61. K-12 Outreach Initiative Kelli Ham, MLIS Consumer Health and Technology Coordinator NN/LM Pacific Southwest Region

62. K-12 Task Force Define audience Define audience Learn about the target community’s needs and available resources Learn about the target community’s needs and available resources Articulate outcomes Articulate outcomes Track and evaluate outreach efforts Track and evaluate outreach efforts Identify best practices Identify best practices Share findings Share findings

63. Task Force Approach Voluntary participation by region Voluntary participation by region Regional approach varies greatly Regional approach varies greatly –Educators –School librarians –School nurses –Public librarians –Students

64. What have we done with K-12 so far? Defined primary audience and types of outreach Defined primary audience and types of outreach –Training to educators –Outreach at conferences via exhibits In the process of creating tracking and evaluation tools In the process of creating tracking and evaluation tools

65. PSR’s Recent Activities Exhibits and presentations at school nurse association conferences Exhibits and presentations at school nurse association conferences In process of identifying magnet schools in California with emphasis on environmental science and medical career track curriculum In process of identifying magnet schools in California with emphasis on environmental science and medical career track curriculum Arizona outreach Arizona outreach

66. Some Great Resources http://kidsenvirohealth.nlm.nih.gov/

67. Afterschool Science Club Curriculum From ToxTown From ToxTown For teachers or science clubs For teachers or science clubs Classroom Activities Classroom Activities Interactive Resources Interactive Resources Career Exploration Career Exploration http://www.toxtown.nlm.nih.gov/text_version/teachers.php

68. What approach… would be effective in making connections with K-12 teachers and recruiting schools as network members? would be effective in making connections with K-12 teachers and recruiting schools as network members?