1. An exploration of the experience of patients who participate in research as co-learners with primary care teams Louise Worswick, PhD Student/Researcher, Bournemouth University lworswick@bournemouth.ac.uk

2. Patient involvement in research Consumerist approach to public service delivery Organisational duty to involve Benefits, impact, barriers to involvement are widely reported The debate rages about the impact of involvement on research outcomes Little consensus about who, why and how to involve Ongoing arguments of tokenism and ticking the box

3. A gap in this body of research What is it like for those who get involved? What is the patient perspective? What can we learn about their experience of being involved in research? Could our learning about the experience be relevant to future involvement activities?

4. Using LIMBIC as a case study LIMBIC - Learning to Improve the Management of Back pain In the Community Interprofessional education Management of back pain Using evidence to influence improvement Principles and methods of quality improvement Improvement learning User involvement

5. Baseline data collection Nine practices from two Primary Care Trusts Repeat data collection Nine practices from two Primary Care Trusts High level evaluation Eight half day workshops with the nine practice teams over 9 months Practice improvement projects undertaken Practice level evaluation after workshops Practice level evaluation Patient representatives join the project Patient representatives participate in the workshops Patient representatives describe their experiences Quantitative approach Qualitative approach Quantitative approach Before and after outcome measures through questionnaires with patients Focus group interviews with workshop participants; GP, Practice nurse, receptionist, patient representative, Fast Feedback evaluation Before and after outcome measures through questionnaires with patients

6. Patient involvement in LIMBIC Patient stories Mutual support group Workshop evaluation Writing papers Celebratory event Practice improvement teams Commissionin g meetings LIMBIC film Wiki Conference presentations Workshop participants Workshop presentations

7. Findings to date Shift in understanding of the value of patient involvement This project has perhaps made me more aware of the value of involving patients in making changes GP Patients influenced the choice of Practices improvement projects Made the process more relevant and gave a purposeful perspectivePhysio Attitudinal shift regarding benefit of shared working and interprofessional education It was very valuable to hear the patients experiences and made our team see things from their perspective…their contribution was much appreciated and valued at the workshops Practice Manager

8. Next steps Continued engagement with patient research participants Dissemination processes for LIMBIC project Identification of relevant LIMBIC project data Interviews with patient representatives and project team Analysis of data from interviews and project data Report findings