1. Getting Cancer Control Message to Policy Makers ~ Kent Hartwig Advocacy Strategies, LLC October 11, 2013

2. Agenda What is Advocacy – Lobbying – Grassroots Communication Methods Focusing the Message Personal Challenge Advocacy Strategies, LLC 2

3. Objectives Have a greater understanding of advocacy vs. lobbying Understand your role as cancer advocates and how to communicate with policy makers Have the tools and knowledge to build relationships with your legislators Know who your legislators are Advocacy Strategies, LLC 3

4. Introduction Advocacy Strategies – Direct lobbying Partnership for Better Health – Grassroots/Grasstops/media campaign – Prevention, Access, Innovation through Collaboration! Advocacy Strategies, LLC 4

5. Cancer is Personal In 2012, about 577,190 Americans are expected to die of cancer (6,410 Iowa residents) 1,500 people a day (18 Iowans) Nearly 1 of every 4 deaths From 2004 to 2008, 16,101 Iowans, on average, were diagnosed annually (40% died) In 2007 cancer cost $226.8 billion Advocacy Strategies, LLC 5 Cancer is Personal and Costly!

6. Advocacy Strategies, LLC 6 Hartwig Family 1994

7. Advocacy Strategies, LLC 7 Flash-forward

8. Advocacy Strategies, LLC 8 What’s Missing?

9. Advocacy Strategies, LLC 9 Why? WHY???? A Day 30 Years

10. My dad died when I was 15 because of cigarettes. That’s my cancer story… Have you told yours?

11. The ability to make your voice heard An attempt to persuade or influence members of a legislative body Actively working for public policy change Its legal! Advocacy Strategies, LLC 11 What is Advocacy?

12. Why is advocacy important for the cancer control message It advances your cause- Establishes awareness through education Increases visibility Supports the democratic process The bottom line- Policies and lives change Increased funding for issues Passage of laws that impact you or your organization and the people you serve 12 Advocacy Strategies, LLC

13. Getting the Attention of Legislators… Advocacy Strategies, LLC 13

14. Advocacy Direct Advocacy or “Lobbying” Direct Advocacy or “Lobbying” Grassroots Advocacy Grassroots Advocacy Media Media 14 Advocacy Strategies, LLC

15. Remember: What you can NOT do Use your position as a volunteer or a member of a 501(c)3 or a government employee to endorse or oppose any candidate for elective office at any level of governance Use your position to engage in any form of electioneering Engage in advocacy or lobbying with taxpayer dollars or while being paid with taxpayer dollars 15 Advocacy Strategies, LLC

16. What you CAN you do? 501(c)3’s can lobby and advocate for funding and policy issues within certain expenditure limits. 501(c)4’s have no limits. Fundraise to pay for legislative lobbying and Grassroots Activities If concerned about non-profit status Engage your elected official on your own time outside of your position Educate and engage policymakers on general principles not specific pieces of legislation. Work with legislators and administrators on policy approaches and implementation Provide research and consequences of inaction 16 Advocacy Strategies, LLC

17. Lobbying Advocacy Strategies, LLC 17 What is it: Lobbying is a form of advocacy with the intention of influencing decisions made by legislators and officials in the government by individuals, other legislators, constituents, or advocacy groups.advocacy legislatorsconstituents advocacy groups Who is it: A person who tries to influence legislation on behalf of a special interest or a member of a lobby. Governments often define and regulate organized lobbying groups that have become influential.

18. Grassroots Advocates Building Relationships with policy makers the public through your advocates How do you engage these targets? – Share a personal story – Be passionate about your issue – Speak with compassion – Communicate with them again & again & again… – Let them know you are the expert 18 Advocacy Strategies, LLC

19. What you want from your advocates… Be a PART of IT Sign up to be actively involved – Send letters, emails, faxes or call your elected officials (build relationships) – Attend the Advocacy Summit/Lobby Days (meet with your elected officials) 19 Advocacy Strategies, LLC

20. Educating the Public Get community leaders (KOLs) to support your issue Recruit the general public to support the cause Speak at any community setting/event to get the word out Keep them informed through newsletters and an active social media campaign 20 Advocacy Strategies, LLC

21. SUCCESS 21 Advocacy Strategies, LLC The KEY to being a successful advocate for any organization is to Communicate and Build Relationships When you do… YOU become the TRUSTED Expert

22. Engage and Educate the Media Educate and inform on your issue ALL the time Invite them to meetings, events, and support groups You become the EXPERT and the go to person 22 Advocacy Strategies, LLC

23. Ways to Engage the Media Submit letters to the editor Talk to reporters about the issues, ask for a news story Submit news releases about your issues and activities Ask to visit with the Editorial Board about your issues or submit memos to the ED Board Remember: People and Personal Stories SELL the media Don’t forget to let your staff know what you are up to, they can always help 23 Advocacy Strategies, LLC

24. Remember… 24 Advocacy Strategies, LLC Legislation comes from real or perceived problems Do your Homework Learn all you can about your legislators Stay current on their position on issues Know your legislators interests and committee assignments

25. Most Effective Methods of Getting Policy Maker’s Attention 1.Face to Face Individual Visit 2.Poll of the District 3.Face to Face Group Visit 4.Telephone Call 5.Personal Letter 6.Resolution Passed by an Organization 7.Petition 8.News Report 9.Form Letter 25 Advocacy Strategies, LLC

26. How to Communicate with policy makers DO Introduce yourself Know your issue Specify the particular bill or legislation of concern Bring supporting materials Express your opinion Be brief and concise Ask for their support Thank you and follow up DON’T Confront or threaten Behave arrogantly Overwhelm people Misinform anyone Confuse issues Ignore opportunities 26 Advocacy Strategies, LLC

27. My Challenge to YOU!!!! Identify your legislators and local officials Contact them – Build a trusted relationship… – Talk with them about issues you cared about… Then ask to them to support your issue! Advocacy Strategies, LLC 27

28. QUESTIONS ?????????????????? THANK YOU!