1. Frederica CASSIS Psychologist-Junguian Psychotherapist Master Degree in Communication and Semiotics Ambulatory of Hemophilia Department of Hematology of Hospital das Clínicas, SP, Brazil

2. PARTICIPATION IN SPORTS: A GRADUAL DISCOVERY

3. BODY + MIND: AN ORGANISM

4. PREVENTIVE WORK WITH PARENTS to prepare their children for sport activities Learning about the different phases of your child´s emotional and physical development. Learning about the different phases of your child´s emotional and physical development. Learn how to avoid dangers and take advantage of the environment you live in. Learn how to avoid dangers and take advantage of the environment you live in. Start physical activities with their child as soon as they can. Start physical activities with their child as soon as they can. Decodify body language: your own´s and your child´s. Decodify body language: your own´s and your child´s. Avoid over-protection: try out an activity, get to experience it and evaluate together what to do afterwards. Avoid over-protection: try out an activity, get to experience it and evaluate together what to do afterwards.

5. Prevention through Movements: learning to do things with the body

6. Sports or sport activity Is sport for everyone? Is sport for everyone? No! If the aim is athletic excellence (competition). No! If the aim is athletic excellence (competition). Yes! If we understand sports activities as: Yes! If we understand sports activities as: 1. regular practice; 2. pleasure and discipline; 3. character transformation when learning about losing and winning; 4. peer and nature interactions; 5. find out about one´s abilities as well as body and mind limitations.

7. Sports and hemophilia A parent can help his child to be more conscious of his true possibilities and true limitations. A parent can help his child to be more conscious of his true possibilities and true limitations. Sports with hemophilia mean: Sports with hemophilia mean: 1. LEARNING ABOUT THE HEMOPHILIA IN ME 2. IMMEDIATE MANAGEMENT IN CASE OF A BLEED 3. CARE WITH TARGET JOINTS 4. PHYSIOTHERAPY STRENGTHEN ESPECIALLY THE WEAK BODY PARTS 5. CHOOSE SPORTS WHICH ARE RECOMMENDED. GET PREPARED SLOWLY, BUT FIRMLY. NO RUSH!!

8. For the kids You want to take up a particular sport? You want to take up a particular sport? Ask yourself: WHY ? Ask yourself: WHY ? Do you know what hemophilia is? What a bleeding is? And the consequences of not telling anyone you have a bleed? Do you know what hemophilia is? What a bleeding is? And the consequences of not telling anyone you have a bleed? How much do you know, how much can you talk about it? How much do you know, how much can you talk about it? Get information, prepare yourself and your body by warming it up, have regular check ups, respect your body needs for either resting or exercising. Get information, prepare yourself and your body by warming it up, have regular check ups, respect your body needs for either resting or exercising. Say NO when you can not practice a sport that might endanger your health. Say NO when you can not practice a sport that might endanger your health.

9. Tips for kids THE MORE YOU FEEL AT EASE WITH YOUR HEMOPHILIA THE MORE YOU WILL BE ACCEPTED BY A GROUP AT SCHOOL, AT THE CLUB OR ANY OTHER PLACE. How should you feel at ease?: 1. By learning to tell others what hemophilia is like and discuss your issues in confidence. 2. By setting your limits and limitations. Do what you believe you cant. Go for it! 3. Hemophilia may not change. However, YOU AS A PERSON, YES you CAN.

10. Tips for parents Sit down with your child and have a conversation Sit down with your child and have a conversation What does HE want to do? What does HE want to do? How are you going to deal with it as a whole family? How are you going to deal with it as a whole family? Make an Action Plan: Make an Action Plan: 1. Look for information about the sport he is interested in; 2. Take a clinical evaluation and look for necessary medical advice; 3. Work on improving and preparing your child’s whole being for the sport; 4. Learn about hemophilia, know how to talk about it in a simple way. It is part of your child’s and your family lives.

11. Final thoughts Final thoughts The child´s body must be a source of pleasure and of interesting challenges too. The child´s body must be a source of pleasure and of interesting challenges too. Children need incentive and discipline. Children need incentive and discipline. Incentive to physical activities in early ages promotes balance, coordination and self-confidence. Incentive to physical activities in early ages promotes balance, coordination and self-confidence. Both parents and children are learning to live with hemophilia: Mistakes and achievements are part of life. Both parents and children are learning to live with hemophilia: Mistakes and achievements are part of life. As a gradual process, it takes time and persistence to adequate your whole organism to a specific sport. As a gradual process, it takes time and persistence to adequate your whole organism to a specific sport.

12. “If a man carries his own lantern, he need not fear darkness.” (Hasidic saying)