1. Evolving Directions & Initiatives Secwepemc Nation Injury Surveillance & Prevention Program Mary McCullough Three Corners Health Services Society Williams Lake BC Injury Research and Prevention Unit Teleconferencing Series – Thursday, July 16, 2009

2. The Secwepemc Nation Our Beginning / Our Vision Injury Surveillance Cycle ACCISS Background OCAP Project Phases Years 1-2-3 Outcomes To Date Project evaluation Evolving Directions Information Overview

3. Secwepemc Nation

4. Recognition of the limitations associated with regional, provincial and national level health data Driven by an interest to collect and manage our own health data Injury surveillance viewed as a means to address a significant health issue while providing a means to build our capacity to manage our health data. Our Beginning - 2003

5. COMMUNITY CENTERED SYSTEM CHARACTERISTICS A boriginal C ommunity C entered I njury S urveillance S ystem (ACCISS)

6. SYSTEM CHARACTERISTICS COMMUNITY CENTERED Uses a minimal dataset approach Tailored data management processes (based on individual community needs) Both ‘paper-based’ & ‘electronic’ A boriginal C ommunity C entered I njury S urveillance S ystem (ACCISS)

7. Minimal Dataset Approach WHO is getting injured? WHEN do injuries happen? WHAT are the circumstances leading to an injury? HOW & WHY are injuries happening? WHERE are the injuries happening?

8. Age Date of Birth Gender Community of Injury Community of Residence Date of Injury Time of Injury ( ) box

9. Minimal Dataset Approach (other data variables) Additional circumstances Cause of injury Intent of injury Nature & type of injury Outcome

10. OCAP Principles - pulls together key principles advocated by Aboriginal people for years O wnership- a community owns information collectively in the same way as an individual owns his/her personal information (cultural knowledge/information/data C ontrol- First Nations are within their rights in seeking control over all aspects of research & information management processes that impact them A ccess- First Nations must have access to information/data about themselves & their communities regardless of where it is currently held P ossession- identifies the relationship between a people & their information (possession or stewardship) Emerged in 1998 as OCA - by the National Steering Committee of the First Nations and Inuit Regional Longitudinal Health Survey

11. INJURY SURVEILLANCE CYCLE (focuses on linking knowledge with action)

12. Secwepemc Injury Surveillance Project Cycle Year - 3 Year - 1 Year - 2 Year - 3

15. injury prevention training & action planning ACCISS user manual advisory input- health data reports & projects knowledge transfer opportunities project evaluation best-better practices integration project Growing & Evolving Capacity Building Opportunities

16. Phase Three (Broadening the Scope of the Project) Year-1 Develop data access protocols Facilitate inter-jurisdictional access to services Year-2 Conduct feasibility testing Year-3 Enhance comprehensiveness of injury data Increase knowledge re: health data management Develop model (inter-jurisdictional data management & planning)

17. Challenges and Roadblocks Role adaptation for community health practitioners Start-up dates Geographic diversity of project communities Sustainability Population sensitivities Data collection points

18. Stages of Learning AWARENESS with awareness comes reasoning UNDERSTANDING with understanding comes accountability KNOWLEDGE with knowledge comes courage Elder: Mark Philips Peterborough ON, Turtle Clan WISDOM with wisdom comes responsibility

19. 1.To identify key implementation barriers & facilitating factors 2.To gain insights about key project learnings & promising practices 3.To identify factors related to community readiness to begin implementation of ACCISS 4.To identify & describe project outcomes 5.To explore external partnership interests 6.To explore from a community-based perspective, ACCISS database capabilities & usefulness Secwepemc Injury Surveillance Project Evaluation Objectives

20. CAPACITY BUILDING VISION: to reduce the burden of injury in our Nation ACHIEVED OUTCOMES (2004-2007) (initiated) increased awareness in communities about injuries increased commitment to injury prevention effective data collection sharing & use of data SHORT (1-2 yrs) ongoing programming initiated knowledge-based planning using injury data enhanced analysis & report generation skills community development activities in evidence INTERMEDIATE (3-5 yrs) ongoing programming active community engagement policy development inter-connected initiatives community-based & Secwepemc program planning established LONG (6-10 yrs) emerging culture of safety Injury trends actively monitored to evaluate injury prevention strategies & activities continued impact on the burden of injury transferred skill sets contributing to improving health, safety & well-being

21. Evolving Directions & Initiatives