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The SPLIT Project: Working Together with Disabled Experts to Improve Communication
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Haringey Disability First Consortium presents The SPLIT Project By Mhairi McGhee Disability Representation Worker
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Haringey Disability First Consortium
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Haringey Disability First Consortium and a D.P.O
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D.P.O = Disabled People’s Organisation
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D.P.O = Disabled People’s Organisation We are run BY disabled people FOR disabled people
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Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
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Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
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Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
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Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
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Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
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Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
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Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
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Elected Steering Committee Local Disabled people Want to improve disabled people’s lives Represent the broad demography of: the ‘disabled community’ the borough Elected by the members
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Our members Pan-diagnosis
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Our members Pan-diagnosis Financial and social cross section
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Our members Pan-diagnosis Financial and social cross section Many of our members benefit from ‘plain English’
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Our members Pan-diagnosis Financial and social cross section Many of our members benefit from ‘plain English’ 60% of our members do not use email
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Our members Pan-diagnosis Financial and social cross section Many of our members benefit from ‘plain English’ 60% of our members do not use email Request reasonable adjustments, lobby for accessible communications, demonstrate best practice......
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......but
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More and more access is dependent on the internet IT literacy as a Human Rights issue Reduces isolation, connects people, improve employability
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......but
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Our secret weapon
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Stroke survivor
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Aphasia Stroke survivor
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Aphasia Stroke survivor parent
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Aphasia Stroke survivor parent Disability campaigner
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Aphasia Stroke survivor parent Disability campaigner author
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Aphasia Stroke survivor parent Disability campaigner author actor
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Aphasia Stroke survivor parent HDFC Steering Committee Member Disability campaigner author actor
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Aphasia Stroke survivor parent HDFC Steering Committee Member Disability campaigner author actor cyclist
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Aphasia
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is the name given to a collection of language disorders caused by damage to the brain
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User lead – Disabled Experts Effective and efficient The contacts The knowledge The experience The passion and drive
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One-to-one learning a Stroke Survivor with Aphasia and a Speech and Language Therapy student
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Drop-ins practice new skills, bring in equipment, ask questions, learn tricks from others
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Feedback
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Because its run by people with aphasia for people with aphasia it avoids a lot of explanation. They already know where you’re coming from. They’ve been there themselves
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Feedback
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To be part of this programme its exciting for us the support workers...coz you actually see the changes they went through... [from] not knowing where the internet explorer is, to coming in, logging in independently
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Feedback
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It helped me a lot of ways. I learnt email. I learnt facebook, I learnt youtube. I can do very skype (sic)
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Feedback
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Its all lead by the students, we’re there to support them but if the student wants to take a separate angle we’re there
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Feedback
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The first time my son phoned up... He’s sitting right in front of me. Its absolutely fantastic.
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Feedback
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To go on the computer and feel confident. Knowing not putting my bank details online, that was good. Before I was a very technical person. Its made me know that I can do it again.
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Feedback
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Course wise or content wise to be able to develop it a lot further. There’s so many different ways we could take this further... I think there’s a lot more opportunity for development
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Feedback From the start to now seeing how far my student has come from the very beginning, its really good to kinda see that progress first-hand (sic)
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Disabled experts design projects that work!
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By Mhairi McGhee Disability Representation Worker mhairi@hwfonline.org.uk www.hwfonline.org.uk/about/disabled_peoples_organisation/ www.youtube.com/watch?v=hYEmYJlgzvI SPLIT film For HEAR Human Rights and Equalities Network Conference Working Together for Health Equalities
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