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PREPARE MINNESOTA FOR ALZHEIMER’S 2020
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WE HAVE COME TOGETHER Everyone can prepare Minnesota for Alzheimer’s Alzheimer’s impacts everyone
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PREPARE MINNESOTA FOR ALZHEIMER’S 2020 TO PREPARE M INNESOTA Prepare Minnesota for Alzheimer’s 2020 is a statewide, voluntary collaboration that includes over 50 organizations and 130 individuals seeking to prepare for the budgetary, social, and personal impacts of Alzheimer’s disease by 2020.
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PREPARE MINNESOTA FOR ALZHEIMER’S 2020 FOR THE RISE OF ALZHEIMER’S DISEASE AND OTHER DEMENTIAS The rise of Alzheimer’s disease and other dementias in Minnesota will bring enormous cost and burden to individuals with the disease, their families, caregivers, employers, communities, and Minnesota.
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PREPARE MINNESOTA FOR ALZHEIMER’S 2020 ALZHEIMER’S DISEASE Alzheimer’s is one type of dementia that accounts for up to 70% of all dementias. Alzheimer’s is NOT normal aging; it’s a progressive, fatal, brain disease. There is a new case of Alzheimer’s disease in the U.S. every 68 seconds. Of Americans aged 65 and over, 1 in 8 has Alzheimer’s, and nearly half of people aged 85 and older have the disease.
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PREPARE MINNESOTA FOR ALZHEIMER’S 2020 ALZHEIMER’S DISEASE In 2011, 70% of people with Alzheimer’s lived at home with help from family members. In Minnesota over 241,000 Minnesotans were caring for someone with Alzheimer’s, providing unpaid care valued at $3.3 billion The physical and emotional impact of caregiving is estimated to result in $148 million for Minnesota caregivers. One in seven people who have Alzheimer’s live alone.
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PREPARE MINNESOTA FOR ALZHEIMER’S 2020 ALZHEIMER’S DISEASE Without change, the total cost of care for Americans age 65 and older with Alzheimer’s disease will increase five-fold per year. In Minnesota alone, these costs could reach $20 billion, most of that coming from personal funds and Medicaid dollars.
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PREPARE MINNESOTA FOR ALZHEIMER’S 2020 PREPARING M INNESOTA Prepare Minnesota for Alzheimer’s seeks to: 1.Increase early identification and improve ongoing care; 2.Sustain caregivers by offering them information, resources and support; 3.Equip communities to support their residents who are touched by the disease; 4.Identify and invest in promising approaches that reduce costs and improve care; and 5.Raise awareness, reduce stigma and engage community.
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EQUIPPING COMMUNITIES FOR THE IMPACT Prepare Minnesota for Alzheimer’s has developed a Community Tool Kit to assist communities in becoming dementia capable so that they can support their residents who are touched by Alzheimer’s Disease.
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DEMENTIA CAPABLE COMMUNITY A dementia capable community is informed, safe and respectful of individuals with dementia and their families, provides supportive options, and fosters quality of life. Specifically, a dementia prepared community: Ensures access to a variety of high-quality options that improve mobility, housing, health care, supportive services, financial and legal planning and support, and advance care planning; Recruit volunteers and other community resources to respond to the needs; and Foster contribution, connection, and meaning for individuals with the disease and their families.
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A TOOL KIT FOR DEVELOPING DEMENTIA CAPABLE COMMUNITIES A tool kit is available and can be used for: Convening key community leaders and members to understand Alzheimer’s disease and other dementias. Assessing current strengths and gaps in dementia capability. Identifying community goals and planning possible ways to respond. Acting Together to pursue priority goals to foster community preparedness and dementia capability.
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ASSESSMENT Community Awareness Diagnosis, Medical Management and Care Information, Education, Planning Community Supports Local Government Planning
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PMA 2020 is seeking “Action Communities” that will pilot the tool kit. This would entail the following activities : Convene a community team of citizens to review the tool kit and provide feedback as it is developed; Test the toolkit by assessing community needs and identifying possible goals the community might undertake to prepare for needs related to dementia; Take action in a focus area the community team chooses to undertake; and Provide feedback and participate in a survey/evaluation of the tool kit. CALL TO ACTION
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PREPARE MINNESOTA FOR ALZHEIMER’S 2020 PREPARE NOW The rapidly increasing prevalence of Alzheimer’s in Minnesota is an urgent call for us to prepare our systems and communities for the complex needs related to the disease. Learn more or participate in Prepare MN for Alzheimer’s at http://www.collectiveactionlab.com http://www.collectiveactionlab.com Facts about Alzheimer’s disease are from 2011 Alzheimer’s Disease Facts and Figures (www.alz.org)
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