1. JAMES MILEWSKI MENTOR: YUNAN CHEN, ASSISTANT PROFESSOR INFORMATICS Consumer health informatics and chronic illness: gathering requirements in context for a personal health information management system

2. Personal Health Information Management PHIM Why we engage in PHIM PHIM Challenge  Mediums + Distributed Sources + Demands of Health Care System = Work Health Information at Home Spheres of Influence on PHIM

3. Consumer Health Informatics: Approaching PHIM in the Home Medical Informatics/Consumer Health Informatics  CHI: Reaching the patient through computers and telecommunication systems (Eysenback 2000)  Sociotechnical approach to explore interwoven networks of people, tools, routines, sources, and responsibilities of the patient

4. Previous Works The concept of work in the home (Corbin 1985) Privacy of Health: The consumer’s perspective. (Bartolo 2004) The Work of Health Information Management in the Household (Moen 2005) Information Work in the Chronic Experience (Souden 2008)

5. Why Diabetes? Chronic Illness : 78% of health care expenditure (Holman 2005) Previous work focused on diabetes  Personal understandings of illness among people who have type 2 diabetes (Hornsten et al 2004)  Harnessing the potential of the Internet to promote chronic illness self management: diabetes as an example of how well we are doing (Bull et al 2005)  Health communication and knowledge construction (Ginman et al 2003)

6. Purpose Understand the in-home PHIM process of type 2 diabetes patients and their support group Transitions Technologies Challenges of managing How info seeking and tech use change over time

7. Methodology Qualitative study based on in-depth interviews  Participant Recruitment  In-home session collecting data from questionnaire, photos, and interviews

8. Questionnaire Data Sources of Diabetes Information

9. 12 Patients with a mean of 11.5 years as a diabetic Understanding of diabetes and its treatment

10. PATIENTS WERE ASKED TO RANK THE FOLLOWING AREAS WITH 1 BEING THE MOST DIFFICULT Most Difficult Part of Managing Your Diabetes

11. Technology: “We’re you busy yesterday?” Durable Media 37 Photos

12. Transcription Coding Using Grounded Theory: Independent coders sift, chart, and sort material according to key issues and themes until a consensus is reached for the codes. RelyEagerRedundant Info Don’t TrackMemoryTransit AttitudeChallengesRegimen Q: Do you take info between doctors? I: No. (3, 22) Transit I always feel unfortunate that they don’t have a database that the doctors could feed it in, the web or something. (3, 27) Eager I just leave, ah, it in my blood monitor. I have never charted it (3, 99) Rely

13. Preliminary Results and Implications Patients with type 2 diabetes and their support networks  Shift away from paper-based media to various technologies  Rely on IT-enabled diabetes management  Eager for new technologies to augment the home-based PHIM process PHIM system adoption factors  Perceived usefulness and the perceived ease of use across the span of the disease

14. What’s next? Cont’d gathering data: recruit 5 more participants Extracting software requirements and use case scenarios Prototype implementation and testing