1. Alström Team Transitional Care ‘Best Journey to Adulthood’ Marie McGee Transition Care Co-ordinator Rheumatology Department, BCH marie.mcgee@bch.nhs.uk

2. What is Transition? “ Transition is the purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centred to adult-orientated health care systems.” (Blum et al, 1993) In healthcare, we use the word 'transition' to describe the process of preparing and planning the move from children’s (paediatric) to adult services It is a gradual process that gives the YP, their family and anyone involved in the individuals care, time to plan the move to adult services and discuss what healthcare/ lifestyle needs will be required

3. Myths and Facts! Myth – transition is a one off event FACT – transition is a well planned, process which needs a multi disciplinary, interagency, holistic approach Myth – transition is a fixed programme FACT - transition is a flexible process based on individual needs Myth- transfer is the same as transition FACT - transfer is the actual movement of the young person/family and their health records over to adult services

4. Poor Experiences of Transition and Transfer Dumped Abandoned Thrown out Cut off Sudden Tossed out Shaw KL, Southwood TR, McDonagh JE 2004 Not prepared Lack of information

5. Transition Transition plans start at around age 11 Check list of questions- lead to wider conversations Variety of communication styles Suit a variety of needs e.g. VI-LD Builds young peoples independence and confidence Improves young peoples skills and knowledge with their healthcare Prepares the young person and their family for transfer

6. My Health-My Life! Transition Plans Transition Gateway 1 -–Set Up! (11-13) Transition Gateway 2– Get Up! (13-15) Transition Gateway 3-Go! (15-18) Transition Gateway 4-Transfer (16 onwards) Each young person is an individual

7. My Health-My Life! Transition Plans Learning Difficulties Plans Budget Plans- planning direct payments and individualised budgets Parent/Carer Plans Every family requires different types of support

8. Young people are active participants Involve parents/carers Starts early with a holistic approach Transition is a gradual process Transition should result in a well planned transfer to adult services Multi disciplinary/inter agency team around the family Your views are important to us-