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Published byJennifer Moody Modified over 9 years ago
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Specific Department for Newly Diagnosed Population Newly Diagnosed (ND) With no sequels With minimal impairment
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Present Paradox The earlier diagnosis The harder emotional impact
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Panic facing disabilityRun away Mistake: Taking this issue to the field of discrimination It´s not a rejection of the other´s disability but fear of the own potencial impairment Chronicity asks for time The association must provide it Caring about homogeneity at the starting point Providing Access Ramps
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Functions of the association * Mere existence * Referral for quality (medical team, treatment, general management) * Source of Reliable Information * Support to people with MS and their families * Introducer of the broad range of resources and suggestions * Place of belonging (shared background) * Company in chronicity * Complement to the medical care * General counselling provider How to live with MS ?
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Resources Initial interviews: Support and counselling Now what? You can live with MS Family interviews: Support and counselling Detection of compensatory attitudes. Prevention Different levels in socializing with peers Communication through e-mail Pre – institutional meetings Support groups
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Resources Body work sessions Harmonization Acceptance of the first difficulties Social and legal counselling and assistance
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Support group Professional coordination Frequency: every 14 days Open (after a preliminary interview) Numerous registration (absences as a part of the process) Place to focus on MS // Life is not only MS
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Who are our clients? Year Total admission interviews SequeledNewly diagnosed 2000293143 (48,8%) 150 (51,2%) 2001259137 (52,9%) 122 (47,1%) 2002383142 37% 241 63%
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Needs of the ND Multiple and varying Taylor - made proposals Professional flexibility Thank you !!!
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