1. US Department of Health and Human Services Health Resources And Services Administration Maternal And Child Health Bureau Diana Denboba This presentation will probably involve audience discussion, which will create action items. Use PowerPoint to keep track of these action items during your presentation In Slide Show, click on the right mouse button Select “Meeting Minder” Select the “Action Items” tab Type in action items as they come up Click OK to dismiss this box This will automatically create an Action Item slide at the end of your presentation with your points entered.

2. “Facilitate the development of systems of services for children, youth, and adults with special health care needs”….(OBRA ’89) Six Core Outcomes National Centers National Leadership Resource Development Data Collection/Analysis Evidence Base Publish Articles Website Technical Assistance/ Continuous Quality Improvement

3. http://www.cahmi.org/pages/Home.aspx

4. http://www.cahmi.org/pages/Sections.aspx?section=10

7. www.familyvoices.org

8. New page under construction http://www.familyvoices.org/projects?id=0002

9. http://nccc.georgetown.edu

12. http://www.infanthearing.org

13. http://www.geneticalliance.org

14. http://www.nccrcg.org//AM/Template.cfm?Section=Home5

15. http://www.medicalhomeinfo.org

17. http://www.communitybasedservices.org

18. http://www.championsinc.org

19. http://www.gottransition.org

20. National Center for Project Access (NCPA) provides national leadership on improving access to comprehensive, coordinated health care and other services for children and youth with epilepsy. www.accessforepilepsy.org National Coordinating Center (NCC) for Sickle Cell Disease Treatment Demonstration Program (SCDTDP) provides technical assistance; collects and analyzes data; and implements activities required by the program’s authorizing legislation to grantee networks. http://www.nichq.org/scdtdp/home.php State Public Health Autism Resource Center (SPHARC) is working to increase the capacity of state Title V agencies to enhance services and supports to children, youth and families with autism spectrum disorders (ASDs) www.amchp.org/SPHARC Traumatic Brain Injury Technical Assistance Center (TBI TAC) supports the efforts of the Federal TBI Program by providing technical assistance and information to grantees and assisting States as they seek to establish system change. https://tbitac.norc.org

21. For each of 6 systems goals, National Centers, Grants Condition-Specific Centers and Grants Core Outcomes System of Services for CSHCN