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Published bySheena Bailey Modified over 8 years ago
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CCPP: A brief history Origins Founded and incorporated, Fall 2003 501c3 Spring 2004 5yr plan through 2019 Funding overview: 35k/yr ~300k/yr Offices : wfj home 3X new offices A developed board THE BEST STAFF AND VOLUNTEERS Involvement with multiple state and national organizations kentuckycancerfoundation.org
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Perspective Started as an outsider looking in Prior group in charge had failed in mission Prior group in charge had failed in mission Primary goal with governmental organizations was to reapportion existing resources and efforts toward colon cancer screenings Target = most of you in the room Target = most of you in the room Despite what you hear, DO NOT let the perfect planning and evaluation process get in the way of action. Any action, lots of action Any action, lots of action “little d, big A” “little d, big A” Opportunity driven yet aware of obstacles Barriers not the only approach Barriers not the only approach ie potential treatment costs ie potential treatment costs
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Friday, March 12, 2010 In Brief Crit Luallen featured in international women’s report. Business First of Louisville - by Sarah Jeffords Pister Staff WriterSarah Jeffords Pister
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Supply Chain of Cancer Prevention and Early Detection What is your states need? Research Awareness Screening Service Access Screening Service Access
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Who are your partners/targets? connect, engage, convince Nongovernmental State Medical association State Medical association Primary care associations/endoscopy providersPrimary care associations/endoscopy providers Hospital networks and working groups Hospital networks and working groups Insurers Insurers NGO’s - ACS, CCA, volunteers NGO’s - ACS, CCA, volunteers Community health centers Community health centers Governmental – lobbyist required Executive branch Executive branch Legislative branch Legislative branch Public healthPublic health MedicaidMedicaid
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Critical decision point: “How do we lobby for …..?” Generally, governmental employees, state employees ( inc. universities) cannot lobby elected or appointed officials They can educate and inform but are restricted in the ask They can educate and inform but are restricted in the ask Independent NGO’s can and should always lead lobbying efforts among elected or appointed officials Coordination of both most effective
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Governmental affairs = Jason Baird “....the train has left the station.” A brief legislative history 2009 kccsp and advisory committee created 2009 kccsp and advisory committee created 2011 sliding scale payments aka the B & C 2011 sliding scale payments aka the B & C 2013 funding of the kccsp 2013 funding of the kccsp 2015 repeat funding of kccsp 2015 repeat funding of kccsp 2015 lowest barriers and broadest selection in the nation 2015 lowest barriers and broadest selection in the nation Covers Insured and uninsured ( but not Medicare) Insured and uninsured ( but not Medicare) Screening c-scopes regardless of findings Screening c-scopes regardless of findings C-scopes as screening for (+) FIT or (+) sDNA C-scopes as screening for (+) FIT or (+) sDNA
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CDC funding puzzle Do not depend on or wait for the CDC to fix your states colon cancer problem KY screen 34% 69% without direct CDC funding KY screen 34% 69% without direct CDC funding Not getting CDC funding for KY kept us on point to determine our own destiny Neither ours or your program should stop if funding is withdrawn
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What is this going to look like in 5 years? Sustainability Envision a world without the CDC$$ Envision a world without the CDC$$ Raise money outside of governments: Susan G. Komen does Raise money outside of governments: Susan G. Komen does PPP’sPPP’s Saves lives and saves money – easy sell Saves lives and saves money – easy sell Adaptability Emerging technology and studies Emerging technology and studies Changing budgets and elected officials Changing budgets and elected officials How to maintain passion (ala cervical ca) when colon cancer becomes a disease of the past How to maintain passion (ala cervical ca) when colon cancer becomes a disease of the past
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Congratulations You and your state are in the game CC screening is an easier sell than you may think. A win-win-win proposition Focus on the target!
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