1. Improving Mental Health Information Programme: Annual Meeting 2 October 20031 …are you? Improving Mental Health Information Programme …are you? Alastair Valentine Philp Programme Manager Katy Dimmock Programme Officer Sara Davies Specialist Registrar in Public Health Rod Muir Public Health Advisor and Programme Director A programme of the Information and Statistics Division of the Common Services Agency of NHSScotland Duncan Buchanan Catrina Cameron Richmond Davies Julie Gilbert Allison Gilchrist Bill Gold Ian Grant Liz Jamieson Philip Johnston Claire Mackie Kathryn Middleditch Gerry Mulvenna Gordon Thomson Paul Woolman

2. Improving Mental Health Information Programme: Annual Meeting 2 October 20032 Project aims Improving information to support: Integrated individual-centred care let care-provider speak unto care-provider… Quality improvement and clinical governance local initiatives as well as compliance with inspections Strategic planning, public health and epidemiology the services needed rather than incremental ad-hocism The right information… … in the right place …at the right time

3. Improving Mental Health Information Programme: Annual Meeting 2 October 20033 Programme strands… 1.Improving knowledge sharing Networking and workshops National meeting on 2 October 2003 Website and monthly newsletters 2.Making current data more helpful Information clearing house Facilitating research, audit and assessment Influencing policy development 3.Developing the mental health information of the future

4. Improving Mental Health Information Programme: Annual Meeting 2 October 20034 Developing for the future Information culture (workshops) Boxes, applications & wires (hilevspec) Information sets (ICIC) …requires concurrent progress in all three spheres

5. Improving Mental Health Information Programme: Annual Meeting 2 October 20035 Service user perspectives (1) Service users don’t want to retell their personal story. Spending on info systems shouldn’t be at the expense of providing care staff. But enough should be spent to make them reliable Systems should share information to support a patient-centred service rather than collect information for information’s sake. Users and carers should be involved in early discussions about proposed shared care record systems. Service users should always have the right to access their record ‘unless the doctor felt it would be particularly harmful’. Any system should be as simple as possible, and secure. Good information technology can aid good care delivery by enhancing decision making, but is no substitute for good carers.

6. Improving Mental Health Information Programme: Annual Meeting 2 October 20036 Service user perspectives (2) A shared care record should contain information about: who is involved in providing care; how to contact the client; early warning signs of a crisis; and current problems/diagnosis. Systems should provide a link for social workers to health information and vice versa. Nosiness and ‘fishing’ expeditions shouldn’t be allowed. Systems should be designed for compatibility. Not having an electronic shared care record would be worse.

7. Improving Mental Health Information Programme: Annual Meeting 2 October 20037 Info core for integrated care 1.Encounter ID? 2.Care recipient details? 3.Care provider details? 4.Referred from? 5.Where seen? 6.When seen? Urgency? 7.Purpose of visit? 8.Active problems? 9.What happened? 10.What next? Intended to be collected at each significant encounter Subject of extensive consultation across Scotland Mock-ups available at our web site Currently running a retrieval pilot Next step is to run a collection pilot Must dovetail with other aspects of a mental health information system

8. Improving Mental Health Information Programme: Annual Meeting 2 October 20038 High level system spec 1.Single shared assessment documenter 2.Electronic care plan creator and viewer 3.Shared care record (encounters and interventions) with care summary 4.Outcomes measure tool 5.Consent manager 6.Alerts system 7.Standardised referral/discharge/transfer generator 8.Mental Health Act/ Adults with Incapacity Act assessor 9.Staff directory (with contact details and lookup) 10.Care provider diary

9. Improving Mental Health Information Programme: Annual Meeting 2 October 20039 Thank you! Thanks very much for your time! If you want to know more...or would like to let us know what you think...please contact Alastair alastair.philp@isd.csa.scot.nhs.uk; 0131 551 8465 Or visit our (newly revised) website, which is at: http://www.isdscotland.org/isd/collect2.jsp?pContentID=1354