1. Support Planning Planning better futures together

2. The biggest worry for Parents who have a disabled child What is going to happen when I am no longer able to support my child. ? Or after my death ?

3. As parents of disabled children we didn’t sign up for this Our Child Occupational Therapists Physio Therapists Continence advisors Wheelchair clinics Speech Therapists Statementing Home Carers Assessments Endless Hours in Hospitals

4. People who provide support and services Expect to offer us the support we need as a family. Offer our children the support they need

5. Three Kinds of power Power over Making decision on behalf of others. Power with Listen to and be influenced by others Power from within Discover and creatively express abilities and concerns with are spiritually meaningful

8. We all need to understand the problem

9. It starts with being dissatisfied Kurt Lewin D + V+ S is greater than R Disfatisfaciton if your not dissatisfied you will not bring about change. Vision is you do not have a vision – you get tired but its better being tired working towards great things happening. S-first steps. We all need to know where to begin our journey.

10. Know what is needed not just what is always offered.

11. We should work together

12. In order to work together effectively We need to be Informed Believe that people should have meaningful lives Be creative To have good values www.in-control.org.uk

13. Judith Snow