1. At the heart of the dialogue Improving the patient - professional interaction in decision making Janneke Elberse Msc, Ma Janneke.elberse@falw.vu.nl Athena Institute Vrije Universiteit Amsterdam

2. Introduction  Current situation in the Netherlands –Bottom up –Individual projects –Slowly more involvement government

3. Patient participation project  Different initiatives have taken place Diabetes Foundation Burn Foundation Asthma Foundation  Identify and prioritize research topics  Partnership is created between different stakeholders  Special attention for care user group  Dialogue meeting

4. Project Heart Foundation  Partnership  Shared research agenda  Short time span

5. Project Heart Foundation

6. Dialogue meeting Presentation Care users’ perspectives Reflection presentation by PO Work session Problem → Research topic Plenary feedback Work session Dialogue research topic list Prioritizing and mutual understanding Reflection presentation by expert Presentation experts’ perspectives Dialogue meeting

7.  Asymmetrical relation between care users and researchers  Inclusion strategies applied Project Heart Foundation

8. Outcomes  Clear research topics  Participants very enthusiastic  Mutual respect created but  Researcher based research topics  Inclusion /exclusion care users’ perspectives  Behaviour  Verbal interaction

9. Identified obstacles  Asymmetrical relation between stakeholder groups leads to exclusion  Lack of sense of urgency  Care users not empowered enough to speak up

10. Recommendations  How to improve the dialogue between care users and researchers? Decrease asymmetry Increase visibility Empower care users Select care users/ researchers Increase coherency

11. Conclusion Dialogue was a first step in the right direction! but Improvement is needed!

12. Contact Janneke.elberse@falw.vu.nl